Hi, I am not a heart patient but my son is and this looks like a very informative group. Hopefully you all don't mind if I join! Gabe has a CHD called Truncus Arteriosus and has had 2 open hearts and one cath, with the next surgery likely in the next year or two (he tends to worsen quickly though so I think it will be sooner). He has received 2 human valved conduits for his pulmonary artery. His aorta is mildly leaky and he may need that valve replaced one day as well but for now it's stable. Gabe is 9 and pretty active, not very slowed down by his heart at all. We're thankful he's doing so well!
Becca
Becca