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Hi everyone, Hope your all well, I ended up in hospital 2 week ago because of my low heart rate and other symptoms, i spent 3 days in my local hospital and they scared my silly, (won't bore you with the details) but end up my cardiologist from my ACHD team wanted to see me in clinic, I went to...

Hi everyone, Hope your all well and had a nice Christmas, sorry i haven't been around for a while, Looking for some advice, I take 50mg of a beta blocker twice a day as i have sinus tachycardia, Right bundle branch block, PAC/PVC. i was back at my cardiologist in December as an extra...

Hi everyone, Hope your all well, I got my letter from clinic i went to last week and im gutted! Pre op the peak valocity over the right ventricle outflow tract pulmonary valve was 4.4m/s my post op echo showed the valve was a lot better at 1.4m/s but now my numbers are back up at 3.8m/s after...

Hey everyone, Hope your all well, I've just been to post op clinic and i don't no what to make of it to be honest, granted my consultant didn't tell me anything i didn't already no RE OHS, but my pulmonary valve is still leaking, my aortic valve is leaking, my conduit pipe/pulmonary artery is...

Hello everyone!! Thank you so so so much for all the messages; especially Doug, Brian and Scott for my PM’s! Firstly I’m sorry it’s taken me so long to get back in touch, but like the title says I don’t do things by half’s. Go back 2 week ago yesterday, Monday night my consultant came to see...

Hi everyone, Hope your all well! Sorry i haven't been around as much, been busy with school and exams etc etc, Anyway, Had a phone call to say a specialist is coming up to Newcastle from London and he's going to do my next operation.....on TUESDAY!!! in on monday, they said though i should be...

Hi everyone, Hope your well :) This isn't really heart related but i was just wondering if anyone has ever been diagnosed with underdeveloped arteries in the leg? I've been in hospital again for a few days with another suspected blood but after an angiogram they've said i've got a poor blood...

Hello everyone, Just wanted to say hi & sorry for not being around lately, Been really busy with school, family, friends, and been in and out of hospital a few times to with suspected endo, cellulitis, and appendicitis :( but thankfully the endo came back clear, i was on iv's for 10 days for...

Hi everyone, Hope your all well, I've done something a bit silly....i've managed to burn my a good bit of my scar :rolleyes2: Does anyone have any idea what i can and can't put on it? Can you use after sun? I didn't even realise you could get sun burn when there's no sun out!! Last week end...

Hi everyone, Hope your all well, I got a letter through yesterday to say i have been granted funding for my pericutaneous pulmonary valve replacement :) Will be my 6th lot of heart surgery, yesterday i was on cloud nine i'd got my funding etc but todays it's hit me i'm having heart surgery...

Hi everyone, Well it's been 6 weeks since i seen my cardiologist and im still no further forward about what happening with my funding for my 6th op, i HATE all this waiting :( i got my clinic letter through the post today from last month and there's nothin much positive on it i don't...

Hi eveyone, ‎18 years ago today I was in theatre having my very first open heart surgery, my 'truncus repair', at the time I was 13 weeks old, my mam and dad were told my heart was no bigger than a walnut and the op was very complicated and high risk. Truncus arterisosis means when i was born...

You should never judge a book by the cover: http://www.youtube.com/watch?v=ZsNlcr4frs4&feature=share Absolutly amazing!!! :D Love Sarah xxx

Hey everyone, Hope your all well, 2 things really, Firstly I'm having this tooth out on Wednesday :D i actually can't wait, i'm in agony with it, anyway, for those of you that are on anti-coagulants & have had any dental surgery/ tooth extractions, have you had to come of your anti-coagulants...

Hi everyone, Had a cardiac and dental appointment today. Dental hospital first: I've got a chronic infection, and lots of scare tissue in my tooth & gum, therefore no amount of anti-biotics will help & the only way to sort it out is to take the tooth out! which will happen in the next few...

Does having a CHD complicate everything? :/ normally people would go to the dentist have any treatment done and hey thats it, noo not me!! I go to the dentist, who send me up to my local hospital dentist department, who get in touch with my cardiac team about anti-biotics and all the rest of it...

Hi everyone :) Can't beleive it, that this time 10 years ago i was heading to theatre for my second lot of OHS (conduit & pulmonary valve replacement) i was 8 years old at the time, and when the porters came for me, i point blank refused to go to theatre :rolleyes2: (Pre-med had wore off lol )...

Hi everyone, Hope your all well :) Just looking at one of my outpatient letters from September, and it say: "Right ventricular outflow tract obstuction as before, with a pulmonary valve peak valocity of 4.4, aortic valve reurgitation, and tricuspid valve regurgatation, with a peak valocity of...

Deleted, sorry found the answer after i posted, typical lol :rolleyes2: Hope your all well xxx

Hi everyone, Had an email from my nurse, and the plan is to do a perecoutaneous pulmonary valve replacement (will be my 6th lot of heart surgery :eek2: ). But it's not available on the NHS! So my consultant is applying for a special funding for me to have it done this way becuase if it was OHS...