Playing the waiting game....

[Sarah_Louise]

Hi everyone,
Had an email from my nurse, and the plan is to do a perecoutaneous pulmonary valve replacement (will be my 6th lot of heart surgery :eek2: ). But it's not available on the NHS! So my consultant is applying for a special funding for me to have it done this way becuase if it was OHS it'd be number 5 for me and chances are i wouldn't survive it-too high risk, but the down side is it's going to take months to get, so in the mean time i've to get on as best i can,
Gutted really as i just want sorted now....
Sarah xxxx

 

[Cooker]

Got ya in my prayers kid!!!

 

[Ovie]

I'm playing the waiting game on my first and it's awful. Can't imagine how you feel with multiple surgeries. Best wishes to you and hope everything gets sorted out alright.

 

[dfelder]

I'm in the same boat as you Sarah with the pulmonary & multiple surgeries. We are too young for this crap! Just keep your head up and keep moving forward.

 

[Lynlw]

Sorry to hear it will take a little longer, but am glad to hear they are working on you getting a melody valve and not need another OHS. You know you're always in my prayers

 

[Sarah_Louise]

Thanks everyone,
Love Sarah xxxxx

 

[Jkm7]

A cardio once said to me no one should have to go through this once let alone multiple times but who promised us fair?

You're one strong lady, Sarah, and you'll keep on keeping on until they can get your percutaneous approved. We certainly hope that happens very soon.

In the meantime, we are all here to give a lift in any way we can.

You're doing great!

 

[Duffey]

Got ya in my prayers kid!!!

Like the Chimp says, mine too.

 

[Bina]

Keep us posted, best wishes !

 

[bradvo]

Ya got me to keep ya in prayer also, keep positive thoughts.

 

[SB42]

I can't imagine what you are going through, SL...Do your best to maintain a positive attitude and please know that I am praying for you...I contribute to a cool motivational poster website that might add some cheer - www.peelandstickposters.com