Sarah_Louise
Well-known member
Hi everyone,
Well it's been 6 weeks since i seen my cardiologist and im still no further forward about what happening with my funding for my 6th op, i HATE all this waiting
i got my clinic letter through the post today from last month and there's nothin much positive on it i don't think.....It is 3 pages long with my name, address, diagnosis and medications taking up the first page, you just no thats not good lol!
The lung tests i had done:
My VO2 max test results are 27% anything below 28% is classed as very poor,
My FVC is 2.7L normal is 3.7L,
My FEV1 is ony 42% normal is between 80-120%
(Think the normal ranges are right, although did have to use google lol-anyone know different where the results are actually any where near normal lmao?)
It goes on to talk about the peak valocities of the valves:
Tricuspid valve regurgitation of 5.3m/s
Pulmonary valve stenosis/ RVOTO of 4.3m/s
Aortic valve regurgitation 2.9m/s
Bit confused here cause i though the higher the number the worse it is, so looking at that you'd think my tricuspid regurgitations worse wouldn't you? but the letter says its mild?!? is there a difference is a peak valocity when one is regurgitation and one is stenosis? or have i just got the whole thing mixed up? can anyone explain please?
Now i've developed right vetricle dialation and it's hypertrophied wth impaired function and has high pressure, and narrowing of the branch pulmonary arteries going into my lungs,
Had to visit the GP on Monday as i'm retainig fluid, my hands, feet and face are swollen, he thinks its probably caused by my heart not working properly, so i've been started on fruisomide along with eveything else,
Got in touch with my cardiologist to let him no & ask if he'd heard anything and waiting for a reply which i no i wont get till Monday now at the earliest,
But still smiling.....just.....got my A-level exams starting next month too so stressing out about them and revision, but hey ho!
Hope your all well
Sorry for the moan!
Love Sarah xxx
Well it's been 6 weeks since i seen my cardiologist and im still no further forward about what happening with my funding for my 6th op, i HATE all this waiting
i got my clinic letter through the post today from last month and there's nothin much positive on it i don't think.....It is 3 pages long with my name, address, diagnosis and medications taking up the first page, you just no thats not good lol!The lung tests i had done:
My VO2 max test results are 27% anything below 28% is classed as very poor,
My FVC is 2.7L normal is 3.7L,
My FEV1 is ony 42% normal is between 80-120%
(Think the normal ranges are right, although did have to use google lol-anyone know different where the results are actually any where near normal lmao?)
It goes on to talk about the peak valocities of the valves:
Tricuspid valve regurgitation of 5.3m/s
Pulmonary valve stenosis/ RVOTO of 4.3m/s
Aortic valve regurgitation 2.9m/s
Bit confused here cause i though the higher the number the worse it is, so looking at that you'd think my tricuspid regurgitations worse wouldn't you? but the letter says its mild?!? is there a difference is a peak valocity when one is regurgitation and one is stenosis? or have i just got the whole thing mixed up? can anyone explain please?
Now i've developed right vetricle dialation and it's hypertrophied wth impaired function and has high pressure, and narrowing of the branch pulmonary arteries going into my lungs,
Had to visit the GP on Monday as i'm retainig fluid, my hands, feet and face are swollen, he thinks its probably caused by my heart not working properly, so i've been started on fruisomide along with eveything else,
Got in touch with my cardiologist to let him no & ask if he'd heard anything and waiting for a reply which i no i wont get till Monday now at the earliest,
But still smiling.....just
.....got my A-level exams starting next month too so stressing out about them and revision, but hey ho!Hope your all well
Sorry for the moan!
Love Sarah xxx
