UCLA---> here we come! Sammy will be having the autologous pericardial leaflet extension on September 7, 2010 at the Ronald Reagan UCLA building in Los Angeles. The surgery will be performed by Dr. Hillel Laks.
On August 13th we had our consultation and found out that the enlargement of the ventricle and the insufficiency is at a point that with exercise Sammy could develope a life threatening arrhythmia. The echo machine they used at UCLA was so much clearer than what they use up here it was amazing. I think that if they had the state of the art machines up here he would have had his surgery long before this point. We are just waiting to make sure there are no hitches with the insurance and that all goes well. In the process of making arrangements for my mom to come stay with the other kids, school arrangements, work arrangments, and all that. I've been cleaning like mad and trying to make a nice comfortable place in the home for his recovery where the other kids won't jump on him or make him twist.
How is it that when you want something (like to have your son fixed) and then it is that time that you are scared to death of the thing you've wanted for so long? I hate mixed emotions--- they are confusing. Sammy is showing no fear-- says he is excited to have the surgery so he can run faster and get presents...LOL... kids, right!? *sigh* wish it was that easy emotionally for the parents....
On August 13th we had our consultation and found out that the enlargement of the ventricle and the insufficiency is at a point that with exercise Sammy could develope a life threatening arrhythmia. The echo machine they used at UCLA was so much clearer than what they use up here it was amazing. I think that if they had the state of the art machines up here he would have had his surgery long before this point. We are just waiting to make sure there are no hitches with the insurance and that all goes well. In the process of making arrangements for my mom to come stay with the other kids, school arrangements, work arrangments, and all that. I've been cleaning like mad and trying to make a nice comfortable place in the home for his recovery where the other kids won't jump on him or make him twist.
How is it that when you want something (like to have your son fixed) and then it is that time that you are scared to death of the thing you've wanted for so long? I hate mixed emotions--- they are confusing. Sammy is showing no fear-- says he is excited to have the surgery so he can run faster and get presents...LOL... kids, right!? *sigh* wish it was that easy emotionally for the parents....