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I have had a few MRIs earlier and sort fo liked them... If you get a bit detached, it is almost a bit sanctified in the experience, but I can understand your view as well. However, I am now most likely to have another one, and with a pacemaker, I am not sure how cool I may be this time, given...

HI, We are a bunch of thumpers here. I have had it all the time since surgery almost two years ago. I have yet to see a convincing explanation, but they have ranged from water hammer effects (espeically for us with aortic grafts) and now lately Thoraic Outlet Syndrome (TOS) of some sort...

A few of us get this thumping. For some it gets away, for some it remains or even increases with a stronger heart. I have started running again, and with a stronger heart and low rest pulse (50), the thumping while trying to go to bed is really dramatic, sometimes making it hard for my wife to...

I have seen the earlier threads, and that it is not all too conclusive on whether scuba diving is recommended. Are there anyone now active here with good or bad experiences from diving? I used to be a recreational formerly military diver but stopped when my aneuyrism was around 4,7 cm. I am...

I had the shot this Saturday. Had mild side effects (low fever and headache) but otherwise fine. I am quite exposed, working in Stockholm, London and Copenhagen with many co-workers having had it. Also have some issues with the diaphragma and pleuritis, so it felt like an easy decision. ::g

42 and had a 5 second choice between mechanical/tissue and possibly repair after an aortic dissection. Ended up with repair + aortic graft (+ later stent & pacemaker). Now 44 and so far doing well (with a few complications, which seems to be normal under emergency conditions). ::g

I have it big time, now 20 months after surgery. I am getting used to it slowly however. There are numerous threads about this, like Seth's Sternum pounding: http://www.valvereplacement.com/forums/showthread.php?t=29590 which ended up in a study he performed. There are many explanations, like...

I have only had limited restrictions, such as recommendation to only do limited weight lifting, not too deep scuba diving (preferably less than 18 meters) and avoid extreme endurance and performance training. The recommendations seem to differ, but what my surgeons said was that they had seen...

Bigred, It is OK to "torture", that's why we are here. And we don't even see it as torture. Sometimes it really rather makes us happy to be able to convince a stubborn lawyer like cdbheartman, outside the court, to see the logic in doing the surgery well before the yearly risk of rupture is...

I'm so sorry. This is the dark side of this kind of forum, but the bright sides are still much stronger. My thoughts are going to his family. ::g

I have had this quite a lot and especially after my last and much smaller surgery. There are many theories, like stress (incl. post-traumatic) or lack of proper ventilation of the smaller alveolars after the OHS. I have stolen my daughters asthma medicine (Bricanyl) sometimes, and it makes it...

Wires/clamps do not set off metal detectors alone. I fly at least twice a week with wires, a few screws in one foot and a pacemaker as well, and the only time it happens is if I wear one of my larger metal belts and forget to take it off. (And I have never had any issues with the pacemaker...

I did not feel too much pain in the classical way (I am not too sensitve perhaps), but just generally nauseated and in bad condition the first few days. I was probably more messed up than after normal, planned surgeries, but I can not compare. It was not really too bad anyway, but you tend to...

Seth, sorry to hear that the Mayo trip did not render any answers. I have myself made any real improvements, but have been more focused on partly resistant (not MRSA) post-surgical infections (form my last minor surgery). I have however tried a little bit with magnesium supplements, and I...

I wish you the very best luck on your excursion to the Mayo Clinic. As you know, I am curious on these problems myself as well, but have not made any progress lately. I had hopes that the enlargement of my constricted part of the aorta would help, but so far it has not when it comes to the...

I am not sure where you got the 1/3 figure from, but I don't think that is valid for the ones with aneuyrisms, rather for BAV more generically (of which several do not know about it). In any case, I had my valve spared and repaired (cut and stitched in some way). Have minimal leak for now but...

I tend to think that this is very close to what I experience. One peculiar thing for me, is that it seems to occur mostly just before I get infections, so somehow related to the immune system. After my latest surgeries, I have had several infections (MRSA-like, but not the worst sort) in the...

After my recent non-invasive surgery I have experienced a few occasions of what I call "air hunger". I have had this earlier as well, but milder and less often. It is not shortness of breath, in fact, physical activity is the best way to end it, together with some light food. It is rather that...

I have heard of 4,5 cm in some countries, but most hospitals in Sweden seem to go for 5. There is however a discussion ongoing where they see extended CTD (BAV+aneuyrism + something more, like a coarctatio) as higher risk (like Marfans) abd then, I believe, with 4,5 cm as the threshold. ::g...

I was completely stable at 5,3 cm for around 10 years. Until... ::g