C
ChrisM
My infant son was diagnosed with mild Aortic Valve Stenosis at 4 days of age (pressure gradiant of 20-25 mlhg). No other heart abnormalities were present.
He is now 16 weeks old and we just had our second follow-up with our pediatric cardiologist and found out the condition has progressed, with the pressure gradiant now at 35 mlhg, which I believe now puts it into the "moderate" category. Apparently his heart is still structurally normal, with the condition so far causing no effect on his left ventricle, etc.
Our cardiologist says no intervention is necessary at this time and that we will simply continue to monitor it, with our next appointment in three months.
Does anyone here have a child with Aortic Valve Stenosis? Our son is an energetic, happy, thriving baby and this entire thing has me completely bewildered. Do we have to worry about losing him at an early age? Are the various interventions effective, if necessary?
I'd love to connect with anyone who is going through, or has gone through, a similar thing.
He is now 16 weeks old and we just had our second follow-up with our pediatric cardiologist and found out the condition has progressed, with the pressure gradiant now at 35 mlhg, which I believe now puts it into the "moderate" category. Apparently his heart is still structurally normal, with the condition so far causing no effect on his left ventricle, etc.
Our cardiologist says no intervention is necessary at this time and that we will simply continue to monitor it, with our next appointment in three months.
Does anyone here have a child with Aortic Valve Stenosis? Our son is an energetic, happy, thriving baby and this entire thing has me completely bewildered. Do we have to worry about losing him at an early age? Are the various interventions effective, if necessary?
I'd love to connect with anyone who is going through, or has gone through, a similar thing.