Hello there,
well it's been exactly a year since i was diagnosed with bav disease and almost as long trying to get things under control and getting back to work, it's just not happening for me and i'm about to leave my job due to incapacity, beautiful, i'm 37 years old, previous gym freak, worked in an amazing emergency department and now it's all over. For the time being only i'm sure. I have moderate regurgitation, chronic and poorly controlled hypertension, and on top of that have runs of bigeminy, which are beginning to affect me rather too much, i never really know when i'm going to have it but it seems the more active i try to be, the more i am bothered by them. I immediately feel faint, and have fallen out of the shower on a couple of occasions now, as well as passing out into the bananas at the supermarket !!! They have only recently became painful and throbbing in nature, i've had them for so long and i have gotten used to them, they just seem a bit more ferocious these days and it pretty much ruins my day. I do get short of breath at times even doing the cleaning, but normally i am in control of my symptoms, and take some water and rest.
In fact the less i do, the better i feel, and this is a really hard concept i have to come to terms with, i used to work 50 hours per week, went to the gym after work everyday, went clubbing, had a really busy life and now i have to sometimes sit in the shower in case i pass out.
I only have moderate disease, my ejection fraction is good, left ventricle is only mildly dilated at 6.0cm, moderate regurg, and aortic root is 4.1cm
i have amazing doctors, who want to treat my blood pressure first, that is their primary focus. We have discussed the ross procedure as the best solution in the future, all the while though my life is somewhat falling apart, i have always worked, and the prospect of claiming state benefits fills me with shame.
My doctor and surgeon have told me that i am way off needing surgery for the time being, and this scares me. If i feel like this now, how am i going to feel when things progress ? Of course nobody wants to have open heart surgery but i do not want to drop dead in the shower or supermarket, and want my life back.
A bit of a whining post i'm sorry, any advice in pushing these doctors along at all ?
well it's been exactly a year since i was diagnosed with bav disease and almost as long trying to get things under control and getting back to work, it's just not happening for me and i'm about to leave my job due to incapacity, beautiful, i'm 37 years old, previous gym freak, worked in an amazing emergency department and now it's all over. For the time being only i'm sure. I have moderate regurgitation, chronic and poorly controlled hypertension, and on top of that have runs of bigeminy, which are beginning to affect me rather too much, i never really know when i'm going to have it but it seems the more active i try to be, the more i am bothered by them. I immediately feel faint, and have fallen out of the shower on a couple of occasions now, as well as passing out into the bananas at the supermarket !!! They have only recently became painful and throbbing in nature, i've had them for so long and i have gotten used to them, they just seem a bit more ferocious these days and it pretty much ruins my day. I do get short of breath at times even doing the cleaning, but normally i am in control of my symptoms, and take some water and rest.
In fact the less i do, the better i feel, and this is a really hard concept i have to come to terms with, i used to work 50 hours per week, went to the gym after work everyday, went clubbing, had a really busy life and now i have to sometimes sit in the shower in case i pass out.
I only have moderate disease, my ejection fraction is good, left ventricle is only mildly dilated at 6.0cm, moderate regurg, and aortic root is 4.1cm
i have amazing doctors, who want to treat my blood pressure first, that is their primary focus. We have discussed the ross procedure as the best solution in the future, all the while though my life is somewhat falling apart, i have always worked, and the prospect of claiming state benefits fills me with shame.
My doctor and surgeon have told me that i am way off needing surgery for the time being, and this scares me. If i feel like this now, how am i going to feel when things progress ? Of course nobody wants to have open heart surgery but i do not want to drop dead in the shower or supermarket, and want my life back.
A bit of a whining post i'm sorry, any advice in pushing these doctors along at all ?