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Has there been any news lately on Kenny Wayne? I was following his thread and there hadn't been any news for a while. Now it looks like the thread got lost with the big switch to .org. Kenny Wayne & Family, please know that my thoughts and prayers for healing and health are with you, and I hope...

Andrew had his annual exam today (with yet another new doc, as his old one {again...grrrrr!} left last year!) and we left with a good report. His Z-scores are up from last year, which indicates progression of valve disease and further dilation of the ascending aorta, but the increases are small...

I am late, as usual, and can't find the hatching day thread, so I'll just make my own ... I wanted to wish you a very happy birthday and take a moment to say THANKS for all you do here for all of us! I hope your birthday was everything that you wanted. :)

PLEASE PLEASE PLEASE... If you have a family history of valve problems, get your kids checked! This was on the local news last night, the second such sad story in just a couple months time. PITTSBURGH -- The Allegheny County Medical Examiner's Office said a Duquesne University freshman died of...

http://www.cnn.com/video/#/video/bestoftv/2009/04/16/ac.shot.thursday.cnn Found this videoclip on cnn's website.

There is usually a small group of American Idol watchers here ... is anyone watching this year, and who are your favorites? I really like Adam Lambert!

Coroner: Pittsburgh-Area School Student, 14, Died Of Aortic Aneurysm Updated: 4:48 pm EDT March 26, 2009 FOXBURG, Pa. -- The Clarion County Coroner's office said a 14-year-old student who collapsed at a western Pennsylvania high school on Wednesday died of an aortic aneurysm. Nathan Wagner...

Has anyone heard from Hayley? I have been thinking about her, hoping her situation is improving. Prayers and hugs going out to you Hayley.

Hello Friends, I just wanted to share the results of Andrew's latest card visit. His aortic valve & asc. aorta have remained relatively stable. Also helping him out was a nice bit of growth, which adds to his BSA (body surface area). The larger BSA & relative stability of the valve & aorta means...

Who are you cheering for?! We are in the heart of Steelers Country -- Let's Go Steelers!

Hi -- I've been looking for an update on CHris, but hadn't seen anything lately. How's that little one doing, and how is CHris's foot coming along? Always thinking about you & sending prayers.

Hey Folks, especially moms/dads of pediatric heart patients! I was Googling and came across this Z-score calculator. I thought it may be useful to post on here. http://parameterz.com/Calculators/CardiacStructuresZScores.aspx

Jane ... are you safe on high ground? I was thinking of you yesterday as my husband is in Iowa and was evacuated from his hotel last night due to the flooding! I hope you & any other Iowa members are staying safe!

http://www.local6.com/news/15875360/detail.html

Hi Folks! I don't know if this has been posted here already or not, but since tomorrow is the day... Just wanted to remind everyone that in order to receive your economic stimulus rebate check from the federal government, you HAVE TO FILE A TAX RETURN this year!! Even if you do not have to...

ross, was thinking of your son the other day and wondering how he is doing. how the grandbaby coming ... do you know the sex of the baby? sorry if this has beenposted, i've been a bit of a stranger lately! hoping all is well.

wow. another year already. had andrew at the card for his check this week. he still has good function on the AV, but the dilation of the ascending aorta continues. card says we're probably looking at starting medication to help keep it controlled in the next year or 2. he also talked about an...

We all get a bonus extra day this year --- how did you all spend yours? I spent mine playing with my 4 boys in the awesome 6 inches of snow that fell today!

Just stopping by with a snarl & a growl today. Called this morning to confirm Andrew's card appt for Feb only to find out the doc has left the group! This is the third time this has happened in the last 12 months to us. Is it not considered good professional etiquette to at least inform the...

Andrew is getting ready to craft his first Pinewood Derby car for Boy Scouts! Anyone out there with some tips on how to turn this block of wood into a speed machine??? :confused: