Harrybaby666
Well-known member
I just wanted to let you all know that I had my appointment with Dr. Marcilla Calfon on Friday at Mass General Hospital, and she confirmed definitely that I DO have Hypertrophic Cardiomyopathy (My heart muscle is stiffening) and as a result I DO have Congestive Heart Failure. She said that there is nothing they can do for the CHF except to monitor me periodically with a Echo and possibly a stress test to try and prevent me from having a heart attack as this would cause the CHF to progress even quicker.
I don't know how to say this other than to come right out and say it....they told me that I am dying from this, and because of my diabetes and other health issues, an eventual transplant would be out of the question.
Dr. Calfon would like to see me go through Bariatric Surgery to lose this weight that I have on now, but I did tell her I would consider Lap Band but NOT the full, cut me up inside surgery as my insides are already messed up for one thing and for another, I have a friend that now regrets having the full surgery as she just about died from that alone.
Dr. Calfon made absolutely no mention of the condition of my valves except to say that in my legs and ankles and such, I have "Venous Insufficency" which means the valves in my veins have weakened and are leaking, hence all the fluid retention. She is going to prescribe compression stockings for that.
I will know more after another echo and stress test in Boston the day after Thanksgiving.....Am I scared? Yes.....Am I going to stop living? Not on your life....I will keep going as long as I can keep going, and continuing with school and getting my degree is so very important to me. I am going to keep on enjoying the beautiful days, my beautiful nieces and family and friends and life in general....I will say however, that I am going to live my life the way that I want to and not so much more the way that the society in my area tries to dictate how I live my life. I am more than certain that when my body says its time to rest, that I will follow through.
I don't know how to say this other than to come right out and say it....they told me that I am dying from this, and because of my diabetes and other health issues, an eventual transplant would be out of the question.
Dr. Calfon would like to see me go through Bariatric Surgery to lose this weight that I have on now, but I did tell her I would consider Lap Band but NOT the full, cut me up inside surgery as my insides are already messed up for one thing and for another, I have a friend that now regrets having the full surgery as she just about died from that alone.
Dr. Calfon made absolutely no mention of the condition of my valves except to say that in my legs and ankles and such, I have "Venous Insufficency" which means the valves in my veins have weakened and are leaking, hence all the fluid retention. She is going to prescribe compression stockings for that.
I will know more after another echo and stress test in Boston the day after Thanksgiving.....Am I scared? Yes.....Am I going to stop living? Not on your life....I will keep going as long as I can keep going, and continuing with school and getting my degree is so very important to me. I am going to keep on enjoying the beautiful days, my beautiful nieces and family and friends and life in general....I will say however, that I am going to live my life the way that I want to and not so much more the way that the society in my area tries to dictate how I live my life. I am more than certain that when my body says its time to rest, that I will follow through.
