newbud
Member
Hi all, first time post long time lurker on these pages. My name is wade 32 been diagnosed with bicuspid Aortic alve, regurg and stenosiswent from mild to moderate last June..... Been told no stressful sports as i was getting symtpoms whilst playing top level squash....that was 2 yrs ago. Then during day light headed etc..... They put it down to dehydration as I live in very hot climate.
Had co-oration of the aorta at age of 20 stent implanted aorta narrowed to 1.6mm was lucky it was picked up. First symptom is normally sudden death with that one.
The questions I want answered that I have not got a definitiven answer so far are
Lack of energy, is it in our head because it is so gradual? I have days when I feel like sleeping till lunch and the next can stay up watching movies till 11pm?
I know something is wrong with my body, slight niggles in the chest area, the obvious energy levels
And the biggest my mind!!!!! Does it play tricks with you and freak you out, wonder if you shouldn't go for that bike ride, jogging etc...... My doctor put me on Valium for a month when I got the news I was a bit stressed. That has passed
My local doc has told me dont rush surgery I could have inr probs, probs with complications etc.
Is he saying that so being in limbo isn't so bad or is there cause for genuine continuation that this Codition may plague us for the rest of our lives and limit us. I have two young boys 3yrs and 7mnths and it
Confuses the heck out of me and frustrates me
My biggest question after valve replacement do you notice a difference in your being if that makes sense?
Like when you wake the days and weeks after vr your body is getting more efficient, don't feel so doughy
More breathe in the lungs etc......
I really hope that after surgery will be a noticeable difference with my body. I know something is wrong but cause this is so gradual I now after years of it deteriorating do not know what my normal state of being is
And it is starting to get me worried I'll never get it back.
Pphhhewwwwww. I've been wanting to write for a while, think if I refrain it's happening to someone else and not me.....
Thanks to everyone for the work that goes on here, I find a lot of reassurance that we aren't alone.
God bless.
Had co-oration of the aorta at age of 20 stent implanted aorta narrowed to 1.6mm was lucky it was picked up. First symptom is normally sudden death with that one.
The questions I want answered that I have not got a definitiven answer so far are
Lack of energy, is it in our head because it is so gradual? I have days when I feel like sleeping till lunch and the next can stay up watching movies till 11pm?
I know something is wrong with my body, slight niggles in the chest area, the obvious energy levels
And the biggest my mind!!!!! Does it play tricks with you and freak you out, wonder if you shouldn't go for that bike ride, jogging etc...... My doctor put me on Valium for a month when I got the news I was a bit stressed. That has passed
My local doc has told me dont rush surgery I could have inr probs, probs with complications etc.
Is he saying that so being in limbo isn't so bad or is there cause for genuine continuation that this Codition may plague us for the rest of our lives and limit us. I have two young boys 3yrs and 7mnths and it
Confuses the heck out of me and frustrates me
My biggest question after valve replacement do you notice a difference in your being if that makes sense?
Like when you wake the days and weeks after vr your body is getting more efficient, don't feel so doughy
More breathe in the lungs etc......
I really hope that after surgery will be a noticeable difference with my body. I know something is wrong but cause this is so gradual I now after years of it deteriorating do not know what my normal state of being is
And it is starting to get me worried I'll never get it back.
Pphhhewwwwww. I've been wanting to write for a while, think if I refrain it's happening to someone else and not me.....
Thanks to everyone for the work that goes on here, I find a lot of reassurance that we aren't alone.
God bless.