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So I have had no problem getting my insurance to pay most of the tab for my recent PVR but they are stubbornly refusing to pay for my pre op CAT scan. They keep insisting that I should have had an MRI instead and they will only pay for MRI's despite letters from 2 different of my doctors stating...

Ok so I am really curious about this. I asked my surgeon and my cardio and neither of them know. What happens to the rest of the pig that they harvest valves from? I hope they aren't wasted. I assume they go on to get eaten somehow but ....where do these pigs come from? are they raised in...

sorry to keep asking questions- but I guess thats why you guys are here. Basically every night since my surgery (though it has gotten worse since I got home) I wake up at least once in teh middle of the night totally drenched in sweat. Sometimes I am hot or sometimes I am already shivering b/c i...

So my stomach started itching tonight and didnt really think about it till i mentioned it to my mom and she got worried and got me worried... there is a pretty non descript red rash splotched on my tummy in a couple of spots (side, around the navel, etc). It doesn't look terrible or anything but...

Im so glad to finally be posting in the "post surgery forum" Hey everyone! Just wanted to let you guys know that I was released yesterday and am now home! Its been a rough road but I am feeling better and better. Many tales of the hospital forthcoming. Thanks for your support everyone!

Hey everyone- Thanks for all the support! someone will be updating my blog during my surgery/ ICU period you can look at it here : http://rebeccadoessurgery.blogspot.com/ just wanted to elt you guys know.

I went down to Emory and did all my PreOp stuff today. Everything looks good to go for Tuesday. They are going to be replacing the PV with a St Jude Epic porcine valve and bypassing my right coronary artery (hopefully with an artery from my chest wall- so i wont need another incision to get a...

I will be having a PV replacement and R Coronary artery bypass oh the 20th. Thus far am doing pretty well at managing my axiety during the day with meditation, calming tasks like coloring, and yoga (which open a whole other can of worms about what yoga poses and can and cant do anymore-for...

Despite having the date for almost 2 months now I just realized recently that my surgery is on Inauguration day! So I get a new pulmonary valve, a new right coronary artery and a new president all on the same day!! seems like a cause to celebrate to me. I'm going to DVR the inauguration stuff...

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Thats what my cardiologist has told me "there is really no good solution" I am having OHS on January 20th. At first we thought it would just be a pulmonary valve replacement. I had decided on a tissue valve (pig) because 1. tissue valves are recommended in the pulmonary position because the low...

ok so yesterday (thursday) I had a cardiac CT (w/contrast) at Emory... I just got a voicemail from Dr. McConnell (cardiologist at Emory) "Hi Rebecca, This is Dr. McConnell from Emory. I am calling in regards to your CT on Thursday. There is an abnormality in one of your coronary arteries. The...

So I am now officially scheduled for my PVR and possible Aortic valve repair on January 20th. I was hoping I could get squeezed in earlier but really I am just glad to have a date. Unfortunately the 20th is the Tuesday after MLK day and they are closed on MLK day so I have to go down to Atlanta...

so. the earliest they could get all my tests scheduled at Emory in a 2 day period (we are trying to make as few 6 hour round trips as possible) is December 18th and 19th. Which obviously means my bid for the Dec 16th surgery date has flown out the window. I am now tentatively scheduled for...

Heard pretty much the same thing they told me in Texas a couple of months ago before I moved: Pulmonary Valve definitely needs replacing, Aortic valve is leaking but they arent sure what to do about it yet (it needs something sometime but- repair? replace? wait till the next inevitable PV...

hello, I've been hanging out on the Adult Congenital Heart Defect boards for awhile and noticed alot of them come over hear when their headed for valve replacements so I thought I'd jump on the bandwagon. Long story somewhat short- Born with pulmonary stenosis (1984)- corrected w/ OHS...