Hi. I'm aerfirmie. My 7 year old daughter was born with Truncus and a leaky aortic valve. They did the repair for the Truncus when she was 3 weeks old. She's been doing well these past 7 years. Even though her aortic valve has severe leakage, they chose not to operate because her heart has stayed a normal size.
A few weeks ago she complained of trouble breathing. The doctors could find nothing wrong and it only happened one time. But as a follow-up, they gave her a cath last Thursday. They were surprised to find that she had an aneurysm. So they are going to have it removed on the 20th - sooner if someone else's surgery is cancelled. They will also replace the aortic valve.
Right now we are at home. I am having trouble getting rid of these morbid thoughts. Do people just walk around with aneurysms? How will I make it during the wait for the surgery and sitting there through the surgery? Isn't she young to need an aortic valve replacement? What does the future hold for us?
A few weeks ago she complained of trouble breathing. The doctors could find nothing wrong and it only happened one time. But as a follow-up, they gave her a cath last Thursday. They were surprised to find that she had an aneurysm. So they are going to have it removed on the 20th - sooner if someone else's surgery is cancelled. They will also replace the aortic valve.
Right now we are at home. I am having trouble getting rid of these morbid thoughts. Do people just walk around with aneurysms? How will I make it during the wait for the surgery and sitting there through the surgery? Isn't she young to need an aortic valve replacement? What does the future hold for us?