Occular migraines

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baradonai

Well-known member
Joined
Jan 13, 2006
Messages
84
Location
Nashville, Tennessee USA
I started having occular migraines right before my TIA stroke 12/31/04. Didn't know what they were then. The stroke was caused by my endocarditis, Dr. thinks. I've been having them ever since. Usually once or twice a month.

My question is, did anyone else begin having these coincidental to their heart problems?
 
I have been having about 3-5 a day since my surgery last Friday (5/5)..
they told me they think it is conected to my low bp?
 
I have been having occular migraines for most of my life (now 52). I honestly don't think they understand them that well, but are trying to. Mine resolve themselves in 23 minutes, to the second. They are brought on by triggers; food, bright light, scents, even noise sometimes. When I was put on a combination of BP lowering medicines (Diovan and Atenolol) they pretty much stopped.

I had my surgery just 3 weeks ago (am still on same dosage of BP meds). They are back with a vengeance. The first 2 weeks I had these fun glowheaded worm things, wiggling around my visual field. Then the zig zaggy prism things. But the one which bothers me the most (ie, kinda scares me) is the one where I lose part of my visual field, like a chunk out of one eye just goes completely black. I did not have those very often, ever, but when I did it was always at a time of high stress or high salt intake. I always assumed that particular kind was just another form of migraine (and probably asked my opthalmologist, too). Because they just recently were happening so frequently, I mentioned them to my surgeon at my 3 week post op. He actually sat down at that point to talk to me. Of course there is a danger of TIA. His caution to me was that with a TIA, the path is always the same....therefore suggesting that the partial blacking out of my vision in the exact same place each time might suggest a TIA. But, because I have a bovine valve, and these embolisms are very rare in bovine valve replacements, he hesitated to be alarmed by my description. Of course, I am to watch for any accompanying signs; slurred speech, numbness, clumsiness, etc.. I have been trying to pay very close attention to what surrounds these events. Lately I notice that I feel almost a muscular eye sensation just before I get that particular brand. I will probably call my opthalmologist next week to see how soon I should go in to see him. The surgeon also mentioned the possible need for a neurologist. Because I never have any pain or headache associated with these, I've just learned to let them pass through......like a thunderstorm.

I don't know if this helps you at all. I'd be interested to know why they think a stroke was caused by endocarditis and then is somehow related to migraines. I know there has been recent scientific conjecture that those with migraines are at greater risk of stroke. Somewhere on this forum there is a link to an article.

Do you notice any change in you since the TIA?

Marguerite
 
I started having ocular migraines when my son was a baby. That was 34 years ago. I get them every now and then. I did have more right after the surgery. Sometime they come in clusters. Generally only have them a few times a year. Always bad when I am trying to drive the car. Don't think they are really a problem except related to safety.
 
Look up visual migraines, atypical migraines, occular migraines, or just migraines in the advanced search function, and you'll uncover a plethora of threads on the subject. It's a very common companion to valve problems, although usually they have far more benign portents than you have apparently experienced.

Best wishes,
 
I have been experiencing these OCCULAR episodes recently as well.

JUst pulled this off the web.

The following are the most common symptoms of heart valve disease. However, each individual may experience symptoms differently. Symptoms may vary depending on the type of heart valve disease present and may include:

chest pain
palpitations caused by irregular heartbeats
migraine headaches
fatigue
dizziness
low or high blood pressure, depending on which valve disease is present
shortness of breath
abdominal pain due to an enlarged liver (if there is tricuspid valve malfunction)


Of course we all have Heart valve Disease but how are the Migraines related?

I have some of these symtoms still even after 1 yr of surgery.

Does everyone else still have these symtoms after surgery? Of course the BP is monitored with MEDS.
 
I had full blown migraines going through puberty, they went away and I started getting the occular migraines in my 20's. My congenital condition is hypertrophic cardiomyopathy, which isn't valve related. I didn't develop aortic insufficiency until in my 30's. So, my question would be, are they valve related? My wife also gets them and she has no heart condition. Go figure:confused:
 
It definitely explains a lot - reading this thread as well as the one a few weeks ago. About five months ago (2 months after my surgery) I had one of these and it really scared me. I never had one before and I have not had another since.

I do know what set it off though: I was on the treadmill with the sun shining through the window onto the left side of my face and into the corner of my left eye for 20 minutes. As soon as I got off the treadmill I was pretty much blind in my left eye for 10-15 minutes. When I regained my vision I hopped on the Net and identified it as an accular migrane.
 
Migraine

Migraine

I had very similar experiences to Marguerite where it was like a black curtain descended across one eye and would obscure about 50% of the field of view in that eye. There was never any pain with it. I had never experienced this in my life until I developed the Endocarditis and have not had any more of these experiences in the 18 months since the VR. :)
 
stroke and endocarditis

stroke and endocarditis

evidently, I had a chunk of the bacteria on the valve and had formed some sort of crust. They thought that perhaps some of this broke free and lodged in my brain causing the stroke.

The blessing from it was that it caused the Drs to start looking closer at my valve to discover the infection.

The stroke righted itself within 72 hours and we went to work fixing the valve.
 
Ocular migraines

Ocular migraines

This board is amazing! I've been reading the thread on ocular migraines for a week now and it just occurred to me that I had those in my mid 20's (I'm 56 now). No pain or anything. As a born hypochondriac I went to several doctors to diagnose this phenomena. One called it a "migraine equivalent" but no one seemed to know what caused it. Eventually they went away and I started having full blown migraines, but those stopped eventually too. These vessels we call our bodies sure are mysterious. I've had none since either of my surgeries.

Thanks everybody for sharing all of your experiences.

Barbara
 
Barb. I had them for many years and didn't know what they were either! I think I almost flunked HS French one year because my seat faced a bright white wall and class was right after lunch --lots of processed food, nitrates, and that bright wall -- I honestly could not see in class! Try to explain that to your parents!! ;) It wasn't until I was in a science class in college and one of our textbooks had drawings of the "visual effects" that I even knew what they were. I sometimes wonder if hormone fluctuations during our lives may account for some of these chapters.

Thank you, Marty, for the explanation about the bacteria breaking off and making its way to your brain. I think that's what my surgeon meant by emboli. I'm glad it didn't affect you permanently, and sorry, Sue, that yours has. I did think it was interesting (I'm repeating myself) that my surgeon said that those type of emboli movements do tend to repeat the same path. So if a person is having symptoms that are unexplainable and seem to be the same exact incidence over and over, it's probably a very good idea to consult a doctor and make sure it's not a TIA.

Only prisms and zig zags today for me -- none of those (much more clearly defined by OldManEmu) scary curtain things. Hope they're gone for me!!

Computer screens can set these off, too, you know.....is it time to break the addiction to VR.com??!! :D

Marguerite
 
I've had "atypical" migraines for a long time but the prevalence really increased post-op. A few months back my neurologist put me on nortriptyline for neuropathy (mostly in my feet and legs). When she put me on it she mentioned that it is also quite effective with the type of migraines I get....no or little pain but both ocular, sensory, and systemic symptoms. I sometimes get the sensation I am walking on a slanted board and usually I feel some numbness on the left side of my face. I am so pleased that it really seems to be helping. I have had a few but for a while it was like everyday! Usually I don't tell anyone when I get one because they don't last but several minutes to a couple of hours and can work through with some juggling around of my activities. I just try to avoid driving with them since I do feel "impaired" especially visually.
 
similiar experiences

similiar experiences

As I posted elsewhere on this board I have been suffering from migraines for years....mine started in 1998 or so. My maternal grandmother also had severe migraines which were somewhat relieved by meds, so the idea that I might have inherited migraine as well was no big surprise. I've had all kinds - ocular migraine, classic migraine are the two most common for me. I'm now on disability due to them, but when I was working my #1 symptoms were weakness/fatigue, dizziness, nausea. The pain with the classic migraines was awful but sleep usually took care of it...in THREE DAYS. Not much fun being a teacher under those conditions! I wish I could have kept teaching, but that's another story.

It has begun to dawn on me that while AVR might in the short term bring about more intense ocular migraine (which I can probably thwart somewhat with some abortives, such as oxygen) I just have a hunch that my situation will probably improve somewhat in the long term.

I believe there is a connection - can't get a doctor to finally admit that, yet.
 
When I was sent to a specialist many years ago with my 'visual disturbances' he diagnosed it as 'classic migraine' even though I didn't have pain. I also suffered from painful migraine which was never accompanied by visual disturbances. My visual disturbances resolve in about 20 minutes, the area of impaired vision gradually expands leaving a clear area in the middle until it has gone.
 
I was having occular migraines with increasing frequency prior to my AVR. I never could identify a specific trigger, but suspected they were somewhat stress-induced. My blood pressure was higher then, so that may also have been a factor.
Since my surgery five years ago I haven't had one. Can't say that I miss them.
 
Yeah you shoulda put a WARNING after your statement - "viewing this page might result in nausea, vomiting and/or experiencing a migraine aura YOURSELF." :) I gotta tell ya, that's a pretty accurate representation of an aura. I will say that my maternal grandmother got the herringbone pattern (like on that site) but mine are more spirals. I'm glad you posted this because I hadn't realized there were differences in the auras.


William said:
http://www.migraine-aura.org/EN/Visual_Hallucinations.html


I get them too and found this site. It takes awhile to get around, but there's lots of good stuff in there.
 

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