Emma
Well-known member
Hi all!!! It's been sooo long since I was here. I think since I keep up with some of you on facebook now I've not come here so often. Thought it was about time I came in and saw how everyone is and gave you an update on Chloe.
For those who don't know us, my 10 year old Chloe was born with complete AVSD and had mitral valve replacement at 18 months old. Been on warfarin ever since.
So Chloe is doing really well (I almost want to whisper that and touch wood at the same time as saying it). She's still on yearly checkups with another one due in June. She's doing almost everything at school her friends do, other than the rougher contact sports but she's ok with that. Warfarin wise all seems to be going well. We've had a couple of high INR's but I'm used to that after 8 years of warfarin so we just reduce dose, have some greens and carry on.
She has recently started to ask some questions about what her heart condition might mean when she's older. I've sort of side stepped them for now and answered as briefly but honestly as possible. For example, she's asked if she'll be able to have babies when she's grown up. I could only reply that its something she will have to speak to doctors about when she's a lot older as we really don't know yet. What else can I say?! Breaks my heart to think she quite possibly won't be able to though. Hopefuly she'll see all the benefits of her replacements outweigh the things she is unable to do in life.
As for the rest of us. Work and life plodding along as usual. Baby Amelia is no longer really a baby. She's coming up for 18 months old and is gorgeous. She's a little monkey though. Whereas Chloe was a calm baby, sitting and playing nicely with toys, Amelia is her opposite! She climbs, pulls things down, gets into cupboards etc etc but is so funny and so much fun I find it difficult to ever tell her off!
That was a bit more of a waffle than it was meant to be. Off to read some posts on here now and catch up on everyone. Hope all are well!!!
Emma
xxx
For those who don't know us, my 10 year old Chloe was born with complete AVSD and had mitral valve replacement at 18 months old. Been on warfarin ever since.
So Chloe is doing really well (I almost want to whisper that and touch wood at the same time as saying it). She's still on yearly checkups with another one due in June. She's doing almost everything at school her friends do, other than the rougher contact sports but she's ok with that. Warfarin wise all seems to be going well. We've had a couple of high INR's but I'm used to that after 8 years of warfarin so we just reduce dose, have some greens and carry on.
She has recently started to ask some questions about what her heart condition might mean when she's older. I've sort of side stepped them for now and answered as briefly but honestly as possible. For example, she's asked if she'll be able to have babies when she's grown up. I could only reply that its something she will have to speak to doctors about when she's a lot older as we really don't know yet. What else can I say?! Breaks my heart to think she quite possibly won't be able to though. Hopefuly she'll see all the benefits of her replacements outweigh the things she is unable to do in life.
As for the rest of us. Work and life plodding along as usual. Baby Amelia is no longer really a baby. She's coming up for 18 months old and is gorgeous. She's a little monkey though. Whereas Chloe was a calm baby, sitting and playing nicely with toys, Amelia is her opposite! She climbs, pulls things down, gets into cupboards etc etc but is so funny and so much fun I find it difficult to ever tell her off!
That was a bit more of a waffle than it was meant to be. Off to read some posts on here now and catch up on everyone. Hope all are well!!!
Emma
xxx
