Glenda,
I know this is a stressful time for you but THERE IS HOPE.
Please use this time to explore hopeful options with surgeons that have the skill and experience to mate a Larger Valve with your smaller organs.
Dr. Edward Bove is a Pediatric Cardiothoracic Surgeon at the University of Michigan in Ann Arbor, Michigan.
He KNOWS how to put Over-Sized Valves in SMALL HEARTS
as he recently did for Jody C (23 mm ON-X valve into a 15 mm Aorta). HE is the Surgeon who put gijanet's daughter Katie together. Maybe he can help you too. If not, there are other Top Rated Surgeons you could also contact.
"Never Give In, and Never Give Up"
You have nothing to loose by giving him a call. (Jody C. and GIjanet have his number...or look it up on the internet). I've seen High Risk Patients accepted for consultations *without* referal many times. All you have to do is tell their office about your Condition. They will take it from there.
Edward Bove - From Wikipedia, the free encyclopedia
Edward Bove is a Professor in the Department of Surgery at the University of Michigan School of Medicine, Michigan, United States. Dr. Bove is also the Head of the Section of Cardiac Surgery, the Director of the Division of Pediatric Cardiovascular Surgery, and the Co-Director of the Michigan Congenital Heart Center at the University of Michigan Health System in Ann Arbor, Michigan. He is well known for his contributions to the repair of congenital heart defects, most notably Hypoplastic Left Heart Syndrome.
Dr. Bove was born and raised in New York. He received his bachelor’s degree from the College of the Holy Cross in Worcester, Massachusetts in 1968, and his medical degree from Albany Medical College, Albany, New York in 1972. Dr. Bove performed his post-doctoral training at:
Surgical Intern, University of Michigan, Ann Arbor, Michigan
Resident in Surgery, University of Michigan, Ann Arbor, Michigan
Thoracic Surgery Research Laboratory, University of Michigan, Ann Arbor, Michigan
Chief Resident in Surgery, University of Michigan, Ann Arbor, Michigan
Resident in Thoracic Surgery, University of Michigan, Ann Arbor, Michigan
Senior Registrar, Thoracic Unit, The Hospital for Sick Children, London, England Dr. Bove was an Assistant Professor of Surgery from 1980-1983 at the Health Science Center Syracuse. From 1983-1985, he was an Associate Professor of Surgery at the Health Science Center Syracuse. Dr. Bove became an Associate Professor of Surgery at the University of Michigan in 1985. In 1988, Dr. Bove was elevated to Professor of Surgery at the University of Michigan. In 1999, he was appointed head of the Section of Cardiac Surgery for the University.
Dr. Bove is considered one of the world's outstanding pediatric cardiac surgeons, and is particularly renowned for his work with the Hypoplastic Left Heart Syndrome.[1] Dr. Bove is also the author of 224 articles on the repair of congenital heart defects. [2] He is board-certified in both General and Cardiac surgery.
Dr. Bove has received recognition for his work including being listed in Who's Who in Health and Medical Services and the Best Doctors in America. Dr. Bove is also on the board of the American Board of Thoracic Surgery.[3]. More recently, Dr. Bove became one of the public faces of the University of Michigan Health System by being prominently featured in the System's new marketing campaign.
Dr. Bove is married and has two children, Christopher and Susan.
[edit] Quotes
"Sadly, we lose some. It upsets me as much today as ever - just ask my wife. The high risk - it wears on you. Some days I'm as high as the top of the world, but other days I'm deflated lower than the curb on the road." [4]
Also see the following link:
http://www.med.umich.edu/michigandifference/victor/bove.htm
Please keep us posted as to what you find out.
