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    For Kids- what do you guys think is appropriate to tell them?

    I was diagnosed with BAV at age 8 and read my own medical journals (dad was a cardiologist and I had access to his library) to understand it all. It terrified me that my mom chose the approach NOT to talk about it with me. My imagination ran away with me and I STOPPED telling anyone about my...
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    Anyone Had Problems With Hair Loss?

    Hair Loss after Surgery Hair Loss after Surgery Just an update for the folks dealing with hair loss. after OHS and AAA surgery. I have had total recovery of all my hair and it all played out just as my dermatologist explained with his diagnosis of telogen effluvium. Keep the faith. In my case...
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    Effects of Heart Lung Machine Post OP

    I am almost two years post op from my second aaa heart surgery and pumphead is my biggest issue..i've heard it called bypass brain. I would really like to see more research done on this area of recovery after multiple ohs experiences. I feel as though i spend lots of energy overcompensating to...
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    Anyone Had Problems With Hair Loss?

    You can look up telogen effluvium and any good dermatologist will tell you the hair loss that lasts for about 3-4 months starting about 2 months after heart surgery is just that. I too was completely freaked out when my long thick hair starting coming out all over the shower and my stylist...
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    BAV and Aneurysms

    survivor here to wish you well. survivor here to wish you well. Best of luck to you as you make these important decisions. I have had two heart surgeries, one at age 35 to replace my unicuspid aortic valve and one at 55 (just over a year ago) to fix an ascending aortic aneurysm. The doctor...
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    One week to go...

    good luck betsy good luck betsy Betsy, I had aortic valve replaced almost 20 years ago and had an ascending aneurysm repair 6 months ago. Just before my surgery I wrote to this website about my concerns with an active lifestyle being thwarted. I can tell you with CERTAINTY that you will be...
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    Mid Scapular Pain after TAAD Ascending Aneurysm Repair

    Back Pain Issue Back Pain Issue Evelyn, thanks for writing. Yours is the most accurate description of my pain too. I have said it feels like a manual knife sharpener stick poking into one single spot near my left shoulder blade and it is always that same spot. My pain also appeared right...
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    Scars?

    Scars advice post surgery Scars advice post surgery I am 6 months post op now from my second OHS. I have seen 2 dermatologists and one recommended RUBBING my scars frequently as soon as it doesn't hurt to do so- and applying MEDERMA. The second recommended against MEDERMA and in favor of plain...
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    Long time reader, first time poster

    Welcome Joel Welcome Joel Good luck with your surgery. I hope you will be back in the saddle is no time. I had my first surgery at age 35 and you are likely to be resilient. Your loving family will be great motivation for healing quickly. Your wife may enjoy the postings in this webiste for...
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    late developing anxiety

    Keep your chin up Keep your chin up I am just 5 months post op for the second time and read your story. It's comforting to see all the people who have chimed in. My hair is falling out in clumps still and I think everyone's experience,physical or psychological, with the shock of such...
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    Mid Scapular Pain after TAAD Ascending Aneurysm Repair

    I had surgery on May 2 to repair an ascending aortic aneurysm and it was my second open heart surgery as my signature shows. I am now five months post op and have recurring pain in the mid back just slightly to the left side. It is the exact spot that caused me severe pain post op and...
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    Losing my hair?

    hair loss vytorin or other statin drugs hair loss vytorin or other statin drugs I have been on coumadin since my 1988 AVR and never noticed hair loss or thinning. I just had a second heart surgery on May 2, 2007 for an ascending aortic aneurysm and am experiencing hair loss now. I was put on...
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    4 months post up and good as new

    You Go Brad! You Helped Me Lots You Go Brad! You Helped Me Lots Brad, I just need to thank you for your past and present encouragement. You wrote to me several months back to relieve my worries about playing competitive tennis again. On May 2 I had AAA surgery for an ascending aortic...
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    I've got a surgery date!

    Me Too, A Surgery Date Me Too, A Surgery Date I am having my ascending aortic aneurysm fixed by Dr. Joseph Bavaria at University of Pennsylvania on May 2! My previous posts have been about being an avid tennis player and diver and worrying about recovery to be able to do all that. I have a 19...
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    Aortic aneurysms & dissections:guidance for primary care clinicians

    ANEURYSMS and ELECTIVE SURGERY ANEURYSMS and ELECTIVE SURGERY Thanks for this info. Does anyone have a history or example of a petite woman (I am 4 ft 11 inches and 95 lbs) with a 4.3 ascending aneurysm via TEE and CT scan who chose to just have it fixed just to get on with her life.. Am I...
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    Aortic Valve Replace. in 12 hrs......

    hope it's over!! hope it's over!! sure hope you are ok and that the surgery is behind you.
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    Surgery on the 27th..help!

    best of luck to you best of luck to you my thoughts and prayers and smiles are with you. you have alot to live actively for and we will be thinking about you. let me know about dr dearani. i am searching for someone to consult with.
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    Let's Get Ross an Extreme Home Makeover!

    Home Makeover Home Makeover I'm new here and and can already tell how much this website means to those of us who have benefited so much.!!! Tell me how I can help with this and I'll do it. Do i juts goto the website and ask that they help him? What is his complete name and address...
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    Aneurysim above 19 Yr Old Aortic Valve in Tennis Player!

    BODY SURFACE AREA BSA and SCRAPPY BODY SURFACE AREA BSA and SCRAPPY Your post was so helpful! I did not know about the BSA guidelines for body size. That's why sites like this and people like you are so great. I will do my research and find a doctor who knows it. Do you happen to have links to...
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    Surgery Successfully Completed

    Congratulations Congratulations best wishes for a speedy recovery!!!!
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