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That is the funny thing his surgeon is a wound care Dr. also. I'm just confused as to why she really isn't more concerned about it. She keeps saying he is on coumadin that is why it is still bleeding, I know that coumadin won't make you bleed for 3 weeks.

That is exactly what I'm talking about. His leg is still bleeding and by bleeding I do mean just oozing. It is very annoying and the wound isn't healing.

So it has been a long time since I have been here but I know that you guys know it all. Caleb had a skin expander suck in his leg 2.5 weeks ago. He is still bleeding out of the incision. His INR is a bit high (3.7) at on Monday. He is off of Lovenox and at last check his platelets were at...

Hi Alison, welcome to the site I joined a few years ago just before my son had his mitral valve replaced. Caleb was 5 and weighed about 40 lbs when he had his valve replaced, it was his third surgery. He has a mechanical 21ml St. Judes valve. We are looking to replace it around 15-16 or when...

doubletroublex2 doubletroublex2 Mine came from my TWO sets of twins. They defiantly are trouble x2!

We are fine too! We are fine too! My whole family has been calling, since this is bridge highly traveled and we had a chance of being on it. Caleb will be admitted on Friday for surgery at the hospital near by and this will create some tricky driving with all of the traffic going different...

Caleb is scheduled to have a birthmark removed on August 6, today the called and said that he will be admitted a week early. Does this seem extreme? What have you expirenced?

Well today Caleb's valve turns 1 today! We just had a check up with the cardiologist and all he can say is that things are "OK". The pressure on the mitral valve is the highest that they would like to see and there is some regurg. Also his aortic valve is being pushed pretty hard. They are going...

Caleb is sick again! This time we can't get his fever to go away. His fever started around noon today and progressively has gotten worse. I know that this is going to throw off his INR but I'm waiting until morning to check where that has gone. We called the on call cardiologist when Tylenol...

Ross I hope that you are feeling better soon. Also praying you don't pick up any other bugs at the hospital! Jamie

Wow! I cannot believe how fast your INR can change when you are sick. Caleb came down with a fever and vomiting on Monday and on Tuesday I called the coumadin clinic that watches his INR, they wanted to me to check him, His INR was 7.1! I also took him in to his pc and he has strep. This is the...

Caleb is having two teeth extracted in March. The dentist originally said to stop taking coumadin for three day before the appointment, but I said that wasn't an option. Now is saying she will do it with him on coumadin. Is this normal I'm a little nervous about the drastic change in opinion...

Cold Cold Yeah! It's cold in Minnesota, this morning when I woke up it was -22 I'm not even sure what the wind chill was at that point. Currently we are at -15 with no wind chill. Yes, here in MN we didn't close school for cold weather. It does occasionally happen but it is usally (spring) fog...

That says it all! That says it all! That is exactly how it was for me growing up in a small (700ish) southern MN community! It is what my Grandma (84) gives to all of her 18 great grandchildren. Thanks for reminding me of simpler times! Jamie

she has my prayers she has my prayers This one touches me very dearly. I have 6 year old boy/girl twins. I can't imagine what this family is going through. Jamie

Twins and heart defects Twins and heart defects Well I guess I will pipe up here. I have two sets of twins, and one of both sets have heart defects. Caleb is the only one in which anyone worries about, but Noah does have some defects (Bilateral Superior Vena Cava, Patent Foramen Ovale and a...

Praying for Lucy Praying for Lucy This is a very exciting and scary time, please let them know that we are praying for lucy! Jamie

bubba's bears bubba's bears Kat, is very inspirational and amazing. If only everyone had her drive. I admire her! Jamie

A new org. A new org. This is a new charity that, I've been followed Alex's (Bubba's) for quiet some time. Kat is a very determined woman, not only helping kids with CHD's but also helping families after the loss of a child with CHD. www.bubbasbears4chd.com Jamie

Mechanical valves in kids Mechanical valves in kids My son Caleb is five (almost 6) and just had a mechanical mitral valve put in. I realize that it is altogether different but we have always faced having to replace his MV. From my experience, they can and do, do mechanical valves in kids of...