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Hello, all, I have been a member of the forum since November 2013. I was diagnosed , unexpectably, last August , after a strenuous hiking vacation to Jackson Hole, Wyoming. I felt terrible out there, I actually thought I was having a heart attack. Anyway, I have had several diagnostic...

I am going to Houston on june11-13, for my first anniversary of the BAV and aorta aneurism (4-2), that was diagnosed last August 2013. I am composing a final list of good questions for Dr. Reardon. Thanks to all of you. I am scared.

I feel kind of stupid asking this, but does anyone know if biotin is bad for a heart valve? I took one today, (supposed to be good for hair growth), and my heart is pounding for some reason. I hope I haven't messed up. If anybody can respond to this, please do!

Hey all, I have a few questions about BAV, that I am now confident to ask. I was diagnosed 8-12-2013 with this, and an enlarged aorta. 4.2-4.5. A. Can you live with a BAV and not replace it? B. What makes it where you have to graft and/or replace it? C. If you do not have stenosis, or...

Hello, Someone along the line here mentioned Robby Benson's book, "I'm Not Dead Yet", and Dick Cheney's book, "Heart". I highly recommend both of these reads. Amazing and informative , both books are.

Hi all, I need to know from any of you who know if systemic steroids aggravate a BAV and ascending aneurysm? I have a terrible sinus infection and need to go to my ENT tomorrow. He usually gives me two steroid shots and antibiotics. Since my diagnosis (in the waiting room), I am scared of...

I just wanted to wish all members of this a wonderful season. I hope it is appropriate to do this here. I have benefited from this forum a great deal since my diagnosis of BAV and aneurysm . Waiting and watching is a little harder than I thought it would be, but everyone here has a story...

Hello all, Brief update on my heart valve issue. Discovered in August 2013, after a terrible episode of "altitude sickness", that when I got home I needed to look into this. With that, and an echo later, then a TEE, then a CT scan, I had a bicuspid valve and enlarged aorta , between 4.2-...

Hello all, This seems to be my first thread. I have been on the forum for a few weeks, and thanks to some special people with my ineptness. I was diagnosed in August 2013 at 57 yr. old with a bicuspid heart valve and a thoracic aneurysm 4.2- 4.5. This rocked my world. I have since gotten a...

I am very interested in Heart Of The Sunrise progress. I just received my diagnosis of a bicuspid heart valve, and aorta enlarged(aneurysm ) 4.2, 4.5. This past August. I am 57 years old. I was wondering how long you watched something get worse before you had surgery? I am new to this...

This will be my first post anywhere in my 57 years. I was just diagnosed with a bicuspid heart valve (from birth), and an enlarged aorta , 4.2 ascending. I have been an avid athlete all my life, and this just showed up in July 2013. I have gotten two opinions, from two surgeons , and they...