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I'm sorry that I have been so negligent in posting this, but the end of the school year always kicks me right square in the butt. Anyway, Katie's little valve buddy Tommy got his new heart last Wednesday. He is doing incredibly well, but there is some concern about the tricuspid valve, which...

I know that some of you old-timers will remember Katie's little heart buddy Tommy, who is also blonde and eight years old. Very few kids have had fontans and valve replacements like Katie. Tommy had a fontan and his tricuspid valve replaced, and I was able to talk to Tommy's mom before Katie's...

Although we heart parents have yet to get a national CHD proclamation signed, many states and cities across the nation have signed proclamations officially designating this week as Congenital Heart Defect Awareness Week. Governor Perry has signed one for Texas, and I'm happy to say that the...

Niki would be proud of Nathan. He updated her caringbridge page and I'm thrilled to say that the news, despite the extensive lack of detail that we like, is great! :D From her page: "Niki's out of surgery. They screwed in two epicardial leads (one is backup) and are getting good separation...

:(I have finally seen a few pictures of the Bolivar peninsula, and it is pretty much gone! This is so tragic! There were many stranded people there as Rollover Pass was already flooded by Friday AM. The surge reached 14.76 ft at the height of the storm. WE love the peninsula and go every...

since no one seems to want to send Katie a shirt :D, but in keeping with the light-hearted spirit of this thread, here is Katie's medal of valor. Anyone seen a Princess Easter bunny who's had five heart surgeries hopping by? (the paper crown she made herself) :D Hugs. J.

Well, I need help again. At his insistance, we are taking my dad to Mississippi to visit the relatives from his side of the family. (Since my brother is dead, he really wants my son in particular to meet his side of the family tree. I think I met em once when I was 15.) Anyway, since we so...

May your birthdays be grand and y'all get everything you wish for today.......................within reason............heehee!:D Many hugs. J.

but it's me, ya know? Our filing cabinets runneth over. With Katie's medical records from five surgeries, two caths, and numerous doctors' visits, grad school stuff, military, tax records for the last seven years (three years' documentation , receipts, etc, take up one file cabinet...

Jody's mom called tonight to update me and said that Jody is doing really, really well. She is tube free and has gotten to take a shower and is moving around a bit. Unfortunately, she has had the usual post-sedative, pain killer nausea and the total lack of appetite, but, overall, is really...

WEll, I feel like a dunderhead..........promised Jody I would have my cell phone on and charged - which it never is cuz I never use it.........still in the twentieth century, I guess...............anyway, it was sitting there on the counter getting all charged up................then I left to go...

I'll save the fancy stuff and fireworks for Mary, but just wanted to wish you a wonderful birthday! May your day be yours! Many hugs and much love. J.

I guess I have been living under a rock somewhere (not a word out of you, Ross! :D ), but I just read this today. http://www.star-telegram.com/629/story/246221.html Scary stuff!!!! :eek: I hope and pray no one here has been affected by these stolen heart valves. It mentions Medtronic...

As usual with Katie, I don't know where to put this, but need to ask the experts who have had OHS for some input........... For the second time in a month, Katie has complained of chest pain in the vacinity of her ribs and a burning sensation in her lungs(she says her lungs, but I'm not...

Please keep them in your prayers, like I need to say that, as you know what a tough road Andrew and his mom have had. Let's all pray that things go very, very smoothly today. Hugs. J. Wendy's last update: July 08, 2007 at 11:46 AM CDT Andrew's surgery is for sure at 11:00 tomorrow...

Well, damn! I'm just sick about this. THat three day hospital stay was just too good to be true, darn it! I know Lyn would welcome your prayers. Hugs. J. From Justin's page: Well as much as I Love Justin, sometimes, I think having a boring kid would have it's plusses. SOO the good thing...

Didn't see this posted and thought we could move Justin officially to post-op! The news is fantastic. Still, keep those prayers going. It ain't over till it' over..........but it's looking really, really good! Hugs. J. Wednesday, June 20, 2007 9:42 AM CDT Good Morning! Justin is doing...

It's been a long time coming! They have been in the hospital since May 5th!!! I'm so grateful to read this news! Keep those prayers going! They really are working! Hugs. J. June 19, 2007 at 10:07 AM CDT Today is the official day we are going up to the floor. I just went to see it and he...

Just read on Niki's page (gnusgal) that she is now officially an auntie! Looks like that last surgery didn't hold her back one bit! That's my Niki! Hugs. J. WEDNESDAY, JUNE 06, 2007 05:58 AM, CDT Wyland Gilly Oeser was born yesterday morning (June 5, 2007) at 10:09 AM, weighing in at 7lbs...

Please keep up the prayers as they are starting to work. I know Wendy has got to be exhausted, so please include her in there somewhere, too. From his carepage: Today has been a good day. Andrew is tired but continuing to heal. His dialysis is working still and he has continued to produce some...