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Johnny Stephens

Well-known member
Joined
Jan 20, 2002
Messages
1,140
Location
Seattle, WA
Haven't been by here in quite a while, so I thought I'd drop in and say howdy. I'm 6+ years out now, and still doing pretty well. Last month I had to undergo my 3rd cardioversion due to atrial flutter. Increasing my Sotalol seems to have helped settle that down.

Blood tests last week uncovered anemia, which is new for me. It's sounding like I will get to experience the colonoscopy and upper GI fun in the next couple of weeks. Yay! My quest to experience every available medical procedure is still alive! :D

I learned a lesson - don't make an appointment with your cardio to talk about reducing dosages. It makes them look at things really closely, and in my case give me MORE, not LESS. :eek:

Hope everyone is doing well - and behaving themselves.

I will try to get by here more often...
 
Always a pleasure to see my joking friend come around. Your starting to sound like my friend only he's been caridoverted 11 times now. Hope yours resolves unlike his.

Colonoscopy is fun! You'll love the prep! Be sure to be alone and really close to the toilet. :D
 
Johnny:

Sorry you're getting to experience more fun than a body needs.

I was diagnosed with anemia (hemolytic anemia) last February. Had more blood tests + TEE last summer. I have some regurg from my St. Jude, which is causing the anemia. As long as I take vitamin B-12, I'm fine. No re-op in the future at this time.

Let's hope this will be the same for you, and not a more serious cause of the anemia.
 
I was thinking about you the other day and wondering why you had been away for so long. So I'm glad to see your post. Sorry about the recent issues. I hope all will be something minor which can be tweaked with a med.
 
It's good to have our most lovely and talented member check in. Best wishes with your test.
 
I'm also having a colonoscopy end of month...again.
The fear of what they will find is worse than the minor intrusion.
Maybe not so minor.
Good luck to both of us.
 
It is so nice to hear from you again. Please let us know how this investigation goes OK? I remember some of your history and know you will be glad to get an "all clear". My husband was diagnosed with pernicious anemia a while back and he is doing much better on the B12 shots.
Have you been able to keep any of the weight off? My hubby had the lap band done a little more than a year ago. He took off quite a bit and has been stable for the last 8 or 9 months. He isn't slim but it sure helped. As far as I'm concerned he is fine the way he is. I hope to hear back from you soon.
 
Be sure to be alone and really close to the toilet. :D

Words to live by.

Betty, the weight thing for me is a lifelong struggle. I have a lot more to lose, but overall, I've sloooooowly dropped about 35lbs since my surgery. My docs would like to see it go faster, but compliment me on the fact that it has been steady.

I work with a guy that had gastric bypass (he had an immense amount to lose), and frankly, it looked like the experience was worse than heart surgery. :eek:

The lap band intrigues me, though, and I think if I get a few things settled down (I'm actually doing pretty well) I might start asking about it. Haven't done it yet.
 
Hope everyone is doing well - and behaving themselves.

*raises eyebrow sharply*

BEHAVING?

My goodness, Johnny...you HAVE been away quite a while if you are thinking we have been behaving..... he he he.


GLAD to see you posting again. Good luck with the tests!



Cort:34swm."Mr Monte Carlo.Mr Road Trip".pig valve&pacemaker
WRMNshowcase.legos.HO.models.MCs.RTs.CHD = http://www.chevyasylum.com/cort
"Things have changed since you've been gone" ... Pam Tillis ... 'Land Of The Living'
 
Hi, Johnny!

Long time, no see. . .

I hear your frustration with the flutter. My mother had flutter, then full-time A-fib from CHF. We did the carsioversion thing, but she ultimately needed a pacemaker. My daughter was about 11 at the time, and she called her grandma "the energizer grandma."

Anyway, good to hear from you, and good luck with the battles.
 
I've had both

I've had both

Words to live by.

Betty, the weight thing for me is a lifelong struggle. I have a lot more to lose, but overall, I've sloooooowly dropped about 35lbs since my surgery. My docs would like to see it go faster, but compliment me on the fact that it has been steady.

I work with a guy that had gastric bypass (he had an immense amount to lose), and frankly, it looked like the experience was worse than heart surgery. :eek:

The lap band intrigues me, though, and I think if I get a few things settled down (I'm actually doing pretty well) I might start asking about it. Haven't done it yet.
I have had both gastic bypass and AVR. I went to work two weeks after gastric bypass and no way in Hell would I have been able to return to work two weeks after AVR.

I was very fortunate I didn't have any complications. A-Fib after AVR controlled with sotalol.

My cardio's comments however were "I was much more concerned for you when you had weight loss surgery than I am about this valve replacement. My feelings weren't the same. This is my experience only. I'm sure others would say differently. The fact that I didn't not have any complications from either surgery was a godsend.
I still struggle with my weight so it's not a magic pill.

Earline
 
It's sounding like I will get to experience the colonoscopy and upper GI fun in the next couple of weeks.

Are you going in Fully Anti-Coagulated or OFF Anti-Coagulation?

If the latter, I highly recommend Lovenox Bridging.
Your Coumadin Clinic or Manager can set up the schedule and patient education.

MY GI Guy refused to do a combined upper and lower 'endoscopy' while anti-coagulated, 'just in case' he needed/wanted to do a biopsy. I gave in and learned how to self administer the Lovenox shots.
 
Welcome Back Johnny

Welcome Back Johnny

Nice to see you! Always nice to have your humor to enjoy! Wishing you the best, Brian Mc
 
Al - I don't know for sure yet (playing phone tag with the scheduling person) about the anti-coagulation, but I'd bet it will go the Lovenox route. I had my monthly anticoagulation meeting this morning, and talked to my manager, and she said "Oh, so you'll be going off warfarin." I've done the Lovenox shots for both my pacemaker procedures, and I am really looking forward to the muti-hued belly of bruises again :D

Marie - I get what you're saying and I'm sure the experience of the gastric bypass surgeries are just as individual as heart surgeries.

My main frustration with the flutter is that it's insidious and very subtle in its symptoms. The first two times were discovered by my doctor, but this last time I finally was able to correlate the weird things that I was feeling to flutter. I called and told *them* I was having flutter, but they didn't believe me. Had the EKG and it was verified. Score 1 for Johnny.
 
Good to hear from you Johnny, it's been a while for both of us.
Good luck with your upcoming tests.
Rich
 
From Pairodocs-Laura

From Pairodocs-Laura

Johnny Stephens; said:
Al - I don't know for sure yet (playing phone tag with the scheduling person) about the anti-coagulation, but I'd bet it will go the Lovenox route. I had my monthly anticoagulation meeting this morning, and talked to my manager, and she said "Oh, so you'll be going off warfarin." I've done the Lovenox shots for both my pacemaker procedures, and I am really looking forward to the muti-hued belly of bruises again :D

Marie - I get what you're saying and I'm sure the experience of the gastric bypass surgeries are just as individual as heart surgeries.

My main frustration with the flutter is that it's insidious and very subtle in its symptoms. The first two times were discovered by my doctor, but this last time I finally was able to correlate the weird things that I was feeling to flutter. I called and told *them* I was having flutter, but they didn't believe me. Had the EKG and it was verified. Score 1 for Johnny.[/QUOTE

Dear Johnny,

I have not had OHS but my husband did. I have had gastric bypass surgery, however, and believe me, you're right when you say the experiences vary a lot. I will mention, however, that most of my cardiac problems resolved with weight loss. I am still not at my ideal weight, but 127 lbs lighter.

Just like OHS, you find the best surgeon with the most experience. My surgeon was LaGrande Belnap in Salt Lake City, and he was one of the pioneers for laparoscopic bypass and developed much of the equipment. He's a bit eccentric, rounds at 2 A.M., but I understand that watching him in the OR is like watching a ballet. It was no great shakes for me to see him at 2 AM since I am used to ungodly hours due to my profession. His real avocation is as a transplant surgeon (abdomen stuff like kidneys, etc) but does the gastric bypass as a labor of love. That's the guy for me!

My insurance would not pay for my surgery even though it was medically necessary. I had to think long and hard before doing it, but in the end, it saved my life. Much like OHS, no? The worst case scenario was not even death-it was permanent disability. In which case we would have moved to California and gone on Medicaid while living with my mother-in-law.

Well, if anyone seriously needs info on gastric bypass or lap band, go to one of the classes offered by the nearest hospital performing the procedure. The websites for the bariatric specialists are pretty good as well. I don't have to tell you guys about the link between heart disease and obesity. The mortality rate for gastric bypass is 1 in 200, so it is definitely the treatment of last resort.

Hope your flutter gets better. New treatments come up all the time. Keep a stiff upper lip and all that.

Still sweltering in Idaho,
-Laura
 
Heeeeeere's that handsome Johnny Stephens! always good to see your handsome face, Johnny. We miss you, but we don't push. We know you'll check in when you are up to it. Sorry you are still trying to take every test they have come up with. hope all is well after the next one.

I have a friend who went the gastric bypass route; they also fixed a hernia while in there. Took her a long time to get over it, but she's thin still, after 5 or so yrs. However, I saw Al Roker on TV this week and he is putting his weight back on. My sister is considering the lap band. Seems to be safer and can easily be undone.

Take care, Johnny. Come see us some more.
 

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