LUVMyBirman
Well-known member
Can't find forums like our great VR.com for Parkinsons. There are a few small ones. But not extensive. If anyone has experience managing someone with the disease. Would love to chat.
I am writing on the behalf of a family member with PD. He has had it for approx 10 years that we are aware of. Medication has been controlling for the past years up until recently. He was switched over time to Stalevo 150 x3 daily. Which seems to be the highest dose. He is a small man. Azelict 1mg once daily.
He was recently hospitilized. 4 days and his Neuroligist did not address his PD meds. He has almost EVERY listed side effect of both medications. They both sound very very toxic. Sedation/sleeps 18 hours a day....if not more. Hallucinations, nausea, stomach pain, rash, blisters confusion. Suddenly can't walk, bathe, swallowing is difficult. All suffen onset.
What would happen if informs the DR. he wants to slowly taper off? What is the benefit of taking both of the meds together? They put him a Lexapro for depression around the time this all started. Which can interact with the Azelict. So we demanded he stop the Lexapro. I am concered his doctors are not getting together and lethal combinations are being ingested. They could not come to resolution during a recent hospitalzation. Mainly because the neuro was not consulted! Hello
Suggested it's time for a new group of Dr. The patients wife says she sick of changing doctors. Which is not the answer I wanted to hear. What...is he to do? Sit and suffer with fear, pain and halluciatoins?
I am writing on the behalf of a family member with PD. He has had it for approx 10 years that we are aware of. Medication has been controlling for the past years up until recently. He was switched over time to Stalevo 150 x3 daily. Which seems to be the highest dose. He is a small man. Azelict 1mg once daily.
He was recently hospitilized. 4 days and his Neuroligist did not address his PD meds. He has almost EVERY listed side effect of both medications. They both sound very very toxic. Sedation/sleeps 18 hours a day....if not more. Hallucinations, nausea, stomach pain, rash, blisters confusion. Suddenly can't walk, bathe, swallowing is difficult. All suffen onset.
What would happen if informs the DR. he wants to slowly taper off? What is the benefit of taking both of the meds together? They put him a Lexapro for depression around the time this all started. Which can interact with the Azelict. So we demanded he stop the Lexapro. I am concered his doctors are not getting together and lethal combinations are being ingested. They could not come to resolution during a recent hospitalzation. Mainly because the neuro was not consulted! Hello
Suggested it's time for a new group of Dr. The patients wife says she sick of changing doctors. Which is not the answer I wanted to hear. What...is he to do? Sit and suffer with fear, pain and halluciatoins?