AshPitt21710
Active member
Hey all,
I'm 23 yr old and will be having my valve replaced next Thursday, the 15th. I have a bicuspid valve with stenosis. I am having the tissue valve because my fiance and I want to have children. I have to be honest, I'm not as worried about the surgery as I am about the moments right after waking up. I also have Aspergers, a high functioning form of Autism. I don't do well with things that are not planned out to the last detail and I have a lot of sensory issues that I know are going to be affected by all this. I guess I've been lucky and I've never been hospitalized before so I don't know how well the IVs will stay, I hate needles so I'm worried about having to get a new IV all the time. I'm also terrified about waking up with the breathing tube still in, I think this is what scares me the most. My doctors are aware of my Aspergers and the issues I have and I know they will try their best to make me feel comfortable but I'm just worried there will be things that they can't change that will really affect me. Any advice to help with the fears I'm still having, especially about the breathing tube?
I'm 23 yr old and will be having my valve replaced next Thursday, the 15th. I have a bicuspid valve with stenosis. I am having the tissue valve because my fiance and I want to have children. I have to be honest, I'm not as worried about the surgery as I am about the moments right after waking up. I also have Aspergers, a high functioning form of Autism. I don't do well with things that are not planned out to the last detail and I have a lot of sensory issues that I know are going to be affected by all this. I guess I've been lucky and I've never been hospitalized before so I don't know how well the IVs will stay, I hate needles so I'm worried about having to get a new IV all the time. I'm also terrified about waking up with the breathing tube still in, I think this is what scares me the most. My doctors are aware of my Aspergers and the issues I have and I know they will try their best to make me feel comfortable but I'm just worried there will be things that they can't change that will really affect me. Any advice to help with the fears I'm still having, especially about the breathing tube?