francie12
Well-known member
Just wanted to share great news with all my vr.com friends! The report from Matt's MRA has come back and... the dilated portion of the asc. aorta tapers back to normal size before it reaches the arch and...the rest of the aorta shows no visible signs of bulging or weakness! What a relief!
Also great, the areas our regular echos have been able to image show the same dimensions reported by the MRA, so we can pretty much trust the precision of future echos with our technician and cardio.
Also great, the doctor (pediatric geneticist) has ordered screening echos for my husband and other son (I've already had a normal echo)! Interestingly, she has done this because of concerns about Aortic Aneurysm Syndrome as opposed to BAVD. She says that there are as many opinions about BAV as there are cardiologists, and when she sees a BAV with a (so far) stable dilated aorta she sees the possibility of that dilation just "coming along with" a BAV and not necessarily continuing to grow to aneurysm size... or being AAS. As far as I'm concerned a rose by any other name would smell as sweet (!) as long as we are doing everything possible to monitor the growth rate and stay on top of the situation.
It has pretty much shaken out that my son's aorta/connective tissue status will be followed by the pediatric geneticist (we have another appointment in two years) and his valve issues and LV size by the cardio. (who, of course, will also follow as much of the aorta as he can see by echo).
Whew! More than you wanted to know? Thanks for listening! I know whenever I see the letters BAV, I always perk up and tune in...
Anyway, as a lurker more than a poster, I'm still out here learning and rooting for you guys!
All the best!
Also great, the areas our regular echos have been able to image show the same dimensions reported by the MRA, so we can pretty much trust the precision of future echos with our technician and cardio.
Also great, the doctor (pediatric geneticist) has ordered screening echos for my husband and other son (I've already had a normal echo)! Interestingly, she has done this because of concerns about Aortic Aneurysm Syndrome as opposed to BAVD. She says that there are as many opinions about BAV as there are cardiologists, and when she sees a BAV with a (so far) stable dilated aorta she sees the possibility of that dilation just "coming along with" a BAV and not necessarily continuing to grow to aneurysm size... or being AAS. As far as I'm concerned a rose by any other name would smell as sweet (!) as long as we are doing everything possible to monitor the growth rate and stay on top of the situation.
It has pretty much shaken out that my son's aorta/connective tissue status will be followed by the pediatric geneticist (we have another appointment in two years) and his valve issues and LV size by the cardio. (who, of course, will also follow as much of the aorta as he can see by echo).
Whew! More than you wanted to know? Thanks for listening! I know whenever I see the letters BAV, I always perk up and tune in...
Anyway, as a lurker more than a poster, I'm still out here learning and rooting for you guys!
All the best!