ScottinAustin
Member
Hello everyone! I?m Scott and I have been visiting this forum for the past 3 years or so. I am 45 yrs old and in late January 2006 I was starting to become a little dizzy at work and decided to visit my PCP for a check up. He found a very loud heart murmur and set me up with an appointment with a local cardiologist. I was found to have severe regurgitation and my valve was not closing due to calcification and I was on the fast track for valve replacement surgery. The surgeon found my valve to be a bicuspid.
I really learned a lot from this forum and spent many nights reading your posts and researching my condition.
After moving back to Austin from Maine, I found my new cardiologist and new test were completed to set a new base line for me. My cardio has been concerned about the size of my ascending aorta and set me up on 6-month check-ups and she told me they were watching for any signs of change. I was told my aorta is 5.1. I recently became a subject for Gentac and the University of Texas Genetic Research Center in Houston in their search for the mutations, which cause my condition. I met with the research doctor this last Thursday and was told to talk to a surgeon soon due to the 5.1 size. I was referred to Dr. Joseph Coselli and Dr. Hafez Safi both out of the Houston area.
I contacted Dr. Coselli?s office on Friday and my records including my recent CT scan are on the way to his office for review.
I?m extremely frightened about the possibility of surgery again. I broke down in the Research Center office when the doctor told me about the possibility of surgery soon. Anyway, I appreciate any advice you folks have regarding my situation.
Thank you, Scott
I really learned a lot from this forum and spent many nights reading your posts and researching my condition.
After moving back to Austin from Maine, I found my new cardiologist and new test were completed to set a new base line for me. My cardio has been concerned about the size of my ascending aorta and set me up on 6-month check-ups and she told me they were watching for any signs of change. I was told my aorta is 5.1. I recently became a subject for Gentac and the University of Texas Genetic Research Center in Houston in their search for the mutations, which cause my condition. I met with the research doctor this last Thursday and was told to talk to a surgeon soon due to the 5.1 size. I was referred to Dr. Joseph Coselli and Dr. Hafez Safi both out of the Houston area.
I contacted Dr. Coselli?s office on Friday and my records including my recent CT scan are on the way to his office for review.
I?m extremely frightened about the possibility of surgery again. I broke down in the Research Center office when the doctor told me about the possibility of surgery soon. Anyway, I appreciate any advice you folks have regarding my situation.
Thank you, Scott