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There may be a period of adjustment. I would record it twice a day for a few weeks, and definitely be in touch with the doctor in the interim. You don't want to get dizzy because of low bp. I remember when I was on a double dose my diastolic readings were in the 50s and I didn't love it. But...

Good to get the bp under control and don't lift heavy weights. That bicuspid foundation site is a bit dramatic and ominous. I try not to visit it too much. Remember it's the most common congenital defect and we don't just drop dead. Staying out in front of any issues will help you manage through...

Sounds like you have good people around you / following you. Wishing you decades of no growth! I am sure you will follow things carefully.

themalteser, I don't want to speak out of turn, but want to weigh in just the same. I am also BAV. My sense is that a 47mm root (or mid sinus) on CT is relevant and I would urge you to see an adult congenital heart disease specialist to determine how best to manage and track this metric. i'm...

Maria, The beta blocker does control the heart rate and is known to have anti-anxiety properties as well. Good luck.

Maria, I can relate and sorry to hear. I am coming up on ten weeks post op for aortic aneurysm, and am in my early 30s. I had terrible anxiety issues at the time of my diagnosis as well. And I also wondered about the different pains post op. It's scary. One thing that might help - I am on...

Gerry, Sorry to hear your troubles. It's understandable that you'd be anxious and worried - it's very scary. The good news is that they have a way to fix this. I am 34 years old. I found out in May of this year, quite by accident, that I had a 5.0cm ascending aortic aneurysm. No symptoms...

Congrats on getting through and good luck in your recovery. It's a long road, but listen to your body and be patient. Hang in there.

Jake - I replied to you by PM, but just in case you didn't receive it, I wanted to wish you luck; they are really good at this stuff these days and you will be happy to get this behind you. Waiting is very difficult. In terms of the hypokinesis - it seems to be a bit of a complex issue and I...

I found this very helpful in learning about aortic aneurysms. Leading minds present their findings on this disease and share their knowledge. I was asked by another member to post the link in this area: http://www.streamingmeeting.com/webmeeting/rillahan/aats/2010/toc.html# The symposium is...

Thanks Duff and Jake. Good luck to you, Jake - when is your date? I am 31 days out of surgery and coming along pretty well. Dr. Svensson in Cleveland was able to repair the ascending aorta and left my well functioning bicuspid valve in place (no David procedure required). I was discharged...

Daren, I can't tell you how much I appreciate the response. Thanks for sharing. I've had the sets of docs tell me this sluggishness is not that uncommon post surgery, and yet I can't find much info on this type of mild hypokinesis. When was your latest surgery date in Cleveland? I had Dr...

I'm hitting an information wall and hoping other members may be able to weigh in. I had OHS (ascending aortic aneurysm repair) at the Cleveland Clinic on October 21, 2010. I was discharged from the hospital on schedule and I've been grateful that recovery has been generally ok. I've struggled...

You should watch these presentations: http://www.streamingmeeting.com/webmeeting/rillahan/aats/2010/toc.html# should be helpful.

Has anyone in the community had min-invasive ascending aneurysm repair at Cleveland Clinic or elsewhere? I understand this is the preferred first option for the Aorta Center at CCF, if possible. Not something I am pushing, but curious if anyone's had experience. Thanks Greg

Thanks for all the warm wishes and the encouragement. To answer Jim's question, I would be going for a valve sparing surgery, which has been the consensus view among the three specialist surgeons I have seen. The BAV performs well, diseased though it may be, and the thinking is that I could...

Hi Folks, I am new to the forum after several months of reading as a non-registered user. 34 years old, BAV diagnosed when I was 9. Very well functioning valve but I discovered by accident (I wasn't looking for it) that I had a 5.0cm ascending aortic aneurysm and dilitation of 4.3 cm at the...