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HI: I have not posted anything for a while but I do have a concern and thought someone out there might beable to help me. In the past 3 months my kidney function has demenished. My Creatinine levels have been rising and my gradient flow rate has been dropping. It went from 90 to 56 and now it...

Its me again: More questions...is it normal for BAV patients with moderate AS and AR to have chronic tachycardia. My heart has been beating above 100 bpm for quite some time. Last night I swear it was beating over 140 bpm. I seriously thought I has in afib but I didn't get it checked out...

Hi: I have BAVD, moderate AR, AS, dilated ascending aorta and LVH. For the past two years I have been experiencing pain radiating down my left leg from my hip to my ankle while lying down. The pain is a deep throbbing ache. For the past 6 months this pain has become unbearable. I also noticed...

Hi: I haven't made a post in awhile. I guess I have been feeling okay of late, however I just found out that I have reduced kidney function. My glomerular Flitration Rate is low. Which means my kidneys are not putting out enough urine and are starting to shut down. Hopefully not for good. I...

Hi I haven't posted for a long time. I have been fairly stable over the past year but two days ago I got this wicked headache while at work. It was so bad that I got sick to my stomache. The headache lasted all day and night. No amount of over the counter pain meds helped. The next day the...

Just thought I would let you know that my kids were screened for BAV and thankfully none of them have one. All three of them have good strong hearts with no abnormalities. EKG and echo studies all normal. So thats one less thing I have to worry about. The cardiologist did say that if I were her...

Rachel is doing okay for the moment. She had a very stressful weekend because her gallbladder decided to act up. Probably because of the chemo and her recent pregnancy. She went completely jaundice and her belly swell to an enormous girth. She gained 8 kilo's (19 pounds) in one day of fluid...

I haven't posted in a awhile because my life has been recently turned upside down. Last Tuesday, December 6, 2005, my 21 year old niece went into labor. Happy day, until she was diagnosed with acute leukemia 3 hours before she delivered a healthy 6 lbs, 4 oz baby boy. When admitted into hospital...

Hi: I just found out that I have a congenital defect in my neck. Aparently it is related to the BAV. I asked my Doctor to order a series of xrays of my spine and neck because I wanted to rule out that the pain I have in my chest is heart/valve related and nothing else. When I saw my Doctor...

Has anyone out there had pericarditis and if so have you had it more than once? I was just diagnosed with it yet again. On anti-inflammatory drugs and pain killers. What causes it? Is it a viral or a bacterial infection. Getting it once, are you more likely to get it again? What should I watch...

Hi Haven't posted in awhile. I have been on vaction for the last 3 weeks. Two weeks ago I went up to Edmonton to visit my brother who is doing quite poorly health wise. He has cystic firbrois and his pancreas is basically pooched. The ducts are completely blocked by mucus. He had 4 shunts put...

Hi guys... I saw a new cardiologist today at the Adult Congenital Heart Defect clinic. He read over my TEE results and looked at previous echo results I had done. He listen to my chest and ran an EKG. I told him about my symptoms and my family history. He then said that he wants to do an...

Hi Guys: I went to the internist yesterday to go over my latested TEE. It basically said that my ascending aorta was 4.0 cm. and that it was significantly larger than the last messurement, but that he may have measured it closer to the root last time. That TEE was in February and it measured...

I went to see one of my internist today. The test results came back for the Lupus test. Good news, I do not have lupus. My abdominal ultrasound was also normal. However, I took it upon myself to do a series of EKGs on myself while at work. When ever I experienced arrythymia or tachycardia I had...

Here it is April 27, 2005. What is it doing in Calgary, Alberta???? Snowing.... Monday it was +20 C and now its -7 C. For those of you that aren't on the metric system.....+20 is nice and hot....tee shirt and shorts weather.....-7C is like 25 F. Cold enough for snow. But thats Calgary for...

I know a few of you out there have survived to talk about your aortic dissection. I recently had and still have symptoms that leads me to believe I may have a chronic dissection of the ascending aorta however the ER doctors don't think so. This what happened. I was at work and started to get...

Hi its me again! Still waiting to see the internist but would like to know if anyone out there (with any of these or all of these problems): bicuspid aotic valve, AS, dilated aotic root and/or dilated ascending aorta ever have swelling on the right side of their neck? My right side of my neck is...

Hi All, Just to let you know that I just spent the last 4 days in the hospital. I was experiencing wicked chest pain and neck pain so I took my chances on yet another trip to the ER. This time they admitted me. I guess the chest xray showed something funky with my aorta. They thought perhaps I...

:( I finally got in to see my cardiologist today. I was suppose to go over my recent echo(performed at his office on Monaday). I had to wait 45 minutes before the nurse brought me into an examining room. There she did an EKG and checked my blood pressure. (What that had to do with my Echo...

:mad: Hi all: I am still fairly new to this site and thus far have gotten some valuable info from some of your members. I have been recently been diagnosed with BAVD. I have moderately servre AV regurgitation with mild stenois.My mitral valve, tricuspid valve and plumonary valve all leak too...