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Love your response, reread twice. I am facing a second OHS sometime in near future. I have a TEE in morning to see how stable my valve is, since last echo was not good. I’m pretty nervous but trying to keep positive.

I had the PFT 7 yrs ago and I was in the phone booth type space. I’m a bit claustrophobic but it wasn’t too bad. I just remember it being long and feeling like I couldn’t always give her what she wanted me to do. I had surgery 61/2 yrs ago and I have unofficially entered the waiting room. I...

My bovine valve is 6 1/2 yrs old. Sorry I’m not sure if it’s name. I had my surgery at Uof M. Unfortunately my cardiologist discovered about a year ago that my two of my leaflets had fused together. This happens only in 2% It’s starting to become a concern and will have another TEE Friday...

Marguerite, Thank you so much for replying and for your helpful breathing technique. Just today I found out that my echo showed no changes from 6 months ago. So that is good news. I am working on trying to calm my nerves. Since my surgery 6 yrs ago, I’ve had a hysterectomy, kidney stone...

Hi everyone, I had my BAV replaced with a bovine valve 6 1/2 yrs ago. About six months ago I was told after a TEE that two of the leaflets had fused together. I feel fine, no dizziness or shortness of breath. My gradient level was 18, it had gone up by 10 from the previous year. My only...

thank you. I'll do that.

My cardiologist is recommending that I have a EP test and a MRI due to an event of tachycardia that they couldnt tell from what chamber of my heart it generated from. I am not a happy camper to say the least. I was wondering if anyone can give me some words of encouragement in regards to this...

Jenny, I am 7 wks post op and I felt and said the same exact things you are expressing. I remember being told that the waiting is the worse part and in some ways it is. While you are waiting your imagination runs wild and you think of all the things that can go wrong. I dont know how you...

CONGRATS and continued good health!

Congrats Allison! I am 6 wks post op and so appreciated reading your post because I can so relate to what you said. I am having a hard time right now in where I am at in my recovery. I too cant really say I feel so much better, I think I do but I am having some post op hiccups. I too worry...

Good Luck Andrea! I am 7 weeks post op so I remember very well how you must be feeling. As difficult as it is to anticipate, you will not believe how fast it goes by and before you know it you will be home healing. Prayers for you. Katm

I am six weeks post op and agree that everyone seems to heal at a different pace or same manner. I get very anixous about how slow the healing seems to progress at times. Yet each week I feel stronger. My biggest issue right now is dizzieness, I seem to have a dizzy spell once a day or so. I...

Pellicle, So happy they found the source of infection. But what a pandoras box. Happy that you are knowledgable enough to know what questions to now ask. I'm still thinking, "goretex sheet?" You said it is normally put there, I had no idea. Keep us posted Take care, Kat

Ever since my diagnosis, I have been worried about whether or not any of my three children have inhereited this condition? They are all adults and know that they need to at their next PE request an echo. My question to members of this forum is, how many of you with BAV have found that your...

ElectLive, Thanks for your post. Very helpful, I am so nervous about trying to sleep in their facility. I dont see me accomplishing that, lol. My doc believes in basically what you were saying about going through all this and screwing it up cuz I dont want to wear a mask on my face. The...

Yes, Pellicle you made sense. I had to reread it a couple of times but thats normal for me anyways.lol I really like the last sentence of trying to rebuild your life but how your personality remains the same. Which is what I think my problem is, I am not accepting that my body has changed...

I just set up an overnight sleep study with them. I told my husband that when I did my at home study that I would be told that I needed to come in and do their overnight study. And sure enough that is exactly what happened. Im not suggesting that my results didnt indicate a problem but to be...

Heard back from my cardio that my sleep study was a disaster. Now I have to go for the sleep over night monitering and get fitted for a device to wear at night. He also had me get fitted for a 30 day heart moniter cuz he said that sleep apnea can cause AFIB and strokes. I am grateful for his...

My heart breaks thinking of your pain both physically and emotionally. My thoughts and prayers for healing will be with you. Take care Pellice. Katm

Sorry about your husband losing his job but seems to me that you then would qualify for aide of some kind. There are a couple of free clinics in our small town so you should be able to find one in your area. Call your health department, they would be able to tell where they are located. I...