The Waiting is So Hard.....

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J

Jkm7

Well-known member
Joined
Oct 15, 2005
Messages
4,384
Location
Massachusetts
Like most everyone else has said, the waiting time is so difficult to get through. I had a TEE last week, have done the blood, chest x-ray etc, and was scheduled for my cath very early tomorrow morning. I just got a call that my doctor who is doing the cath has a family emergency and I was cancelled. They tried to reschedule for Wednesday but I have appointment with my surgeon so now it is this Monday. I feel like I'm 'falling apart' right now. I had it all settled in my mind and was proceeding forward okay. I was holding it together, so to speak. This rescheduling, which I know is so common, is unsettling me and now I have to get my footing again.

I wish it would just be time already and I'd be getting it done and over with.
All indications are I should be in surgery by the end of the month.... fingers crossed there are no more cancellations and rescheduling.
 
Oh man, I'm right there with ya. Somehow, even if it's only talking to us, you'll make it together. I can't tell you how bad it was as it got closer that I just wanted to bolt. If we can get you in the doors, your natural instinct starts to calm you when you realize, wow, this is it.

Never question the rescheduling thing. It's happening for a purpose and your time will be at it's time. Just accept it, even though it sucks and plays with you more.
 
I ditto what Ross said. The waiting was tough for me too. But I have to say once I walked in the hospital I guess I went on autopilot, then they gave me a shot and the rest is history. I am still amazed. It was not nearly as bad or as hard as I expected. I am sure you will find it to be the same.
 
I remember getting a call that my surgical consult was getting cancelled due to an emergency surgery - it just made me numb as I too wanted things just to be over with. The weeks and months of scheduling one thing after another seemed never-ending and was easily the most stressful time of my life. MANY people on this site have had surgeries cancelled literially minutes before being wheeled into the OR, which is about 10,000 times worse than me having a consult rescheduled - I can't even imagine going through that. Hopefully things will start to go a little more smoothly and you'll be able to join us on the other side of the mountain in just a few weeks.

Best wishes.
 
The waiting and the rescheduling are irksome, no doubt. I had a delay due to the winter crud, and that meant more agonizing for a month. But like so many others, when the day finally came, I remember being ready and surprisingly calm walking into the hospital around 6 that morning. Feel free to vent or ask questions here as you progress toward a certain schedule. There's someone here virtually 24/7 willing to talk. All best wishes for your preparation....
 
You people are an amazing group and I so appreciate your support.
This is my second OHS....the first was emergency and I was in the hospital when all of it was scheduled. I didn't have to go through 'the wait'. I was so ill I wasn't fully aware what was happening at the time or if I was, I have little memory.

I really wanted the cath over. My cardio says I live such a healthy lifestyle he'll be shocked if I have any blockages but who knows?!!

Thank you so for being here; for helping those of us 'waiting' to muddle through until it is our time.

Ross........ You are right. There's a reason it was cancelled and I accept it's for the best. It wasn't meant I should have had that procedure tomorrow! It will be done at the time it should be done! But it is so blasted hard waiting.
 
You can know all the reasons and consolations and it's still very hard. Good luck with your cath scheduling and results. May February prove even shorter for you!
 
Lost track of time

Lost track of time

Waiting is awful. Tonight I panicked because the hospital was supposed to call late Friday with the time for my surgery on Monday. Of course, it's Thursday but I got upset because it was after 6 and I hadn't heard from them.
I can see why they tell you not to make any important decisions while you're waiting.

And my name is.........?
 
Yes, the waiting is very hard.......but relax and do not let it stress you.
I know that is easier said than done.

You need to find a place to go in your mind and get away from everything that you are facing. We all face amazingly scary things in our lives and this is one of them!

It is a simple thing to do, even though it does not seem to be....just pick the place and go there. Where ever it is you enjoy the most. Shut your eyes and imagine you are there. Hear the sounds and see the sights and....if you really work at it....you can smell the things around you.

Use music or what ever you need to get there. You need to go there, now.

Relax and take some time to get yourself calmed down!!
 
Bless you All.

Ben...... My mind is taking me to the cruise ship we were supposed to sail and had to cancel when I learned it was surgery NOW. We are sailing in the beautiful Caribbean and the sun is shining...... and I'm looking forward to walking the beach with my DH...even if only in my mind!

He has promised the day he brings me home from the hospital, we will book a 'make up cruise'. :)
 
know what you are going through, been there and done that a few times now.Lots of peope waiting with you. Hope you can get it sorted out and wishing you a speedy recovery when the time comes.
 
Doctor's office just called and changed the time of my cath by just one hour and even that put me into a funk. They told me to be there 9:30 instead of 8:30. Certainly no big deal to change by one hour but I got all anxious again just hearing of a slight change.


I think I'm hopeless! :(
 
Jkm7 said:
Bless you All.

Ben...... My mind is taking me to the cruise ship we were supposed to sail and had to cancel when I learned it was surgery NOW. We are sailing in the beautiful Caribbean and the sun is shining...... and I'm looking forward to walking the beach with my DH...even if only in my mind!

He has promised the day he brings me home from the hospital, we will book a 'make up cruise'. :)
Click to expand...

We were scheduled to cruise to the Caribbean, departing March 1st and had to cancel in January when we learned the surgery needed to happen within the next few weeks. Tom's cardiologist said the Caribbean would always be there.

Good luck on your cath and surgery. We're waiting too, for Tom's surgery.

Judith
 
(((((((((((JKM)))))))))))

Sending you a BIG HUG! I can only imagine what this extra waiting (and of course our yucky wintry weather these last few days isn't very helpful :eek: ) is doing to you and I'm so sorry for you. Keep walking along that beach - perhaps you'll find a lucky shell.
And concentrate on the cath showing good clean arteries!

Do take care!

I'm thinking of you and sending positive thoughts

Susie
 
Hope you don't mind my sharing good news I received today.

I had my cath and thankfully they reported my arteries all clear and heart function stronger than echo had indicated.

They also tell me they think I have an excellent chance my surgeon can do a repair. I see surgeon Wednesday and, hopefully, will get a surgery date and fingers crossed he (the one that really matters) says a repair is possible.

At this point in my journey, I am feeling very 'connected' to the good people here and thank you all for your support.
 
Did somebody say "cruise"?!?!

Did somebody say "cruise"?!?!

Jkm7 said:
Bless you All.

Ben...... My mind is taking me to the cruise ship we were supposed to sail and had to cancel when I learned it was surgery NOW. We are sailing in the beautiful Caribbean and the sun is shining...... and I'm looking forward to walking the beach with my DH...even if only in my mind!

He has promised the day he brings me home from the hospital, we will book a 'make up cruise'. :)
Click to expand...



JudithD23 said:
We were scheduled to cruise to the Caribbean, departing March 1st and had to cancel in January when we learned the surgery needed to happen within the next few weeks. Tom's cardiologist said the Caribbean would always be there.

Good luck on your cath and surgery. We're waiting too, for Tom's surgery.

Judith
Click to expand...

Just so y'all will have something to look forward to why don't y'all join us on a Southern Caribbean cruise on the Caribbean Princess......:D
 
JKM7, That is fabulous news and so glad to hear that a repair is possible for you! I was also able to have a valve repair rather than replacement which for me was the best case scenario so I am sending you my prayers and positive energy that you will be as fortunate as I was! Keep us posted and stay connected~we are here for you!
 
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