Adult Congenital Heart Association

[Debbie]

Thanks to Lyn & Diane for refering me to the ACHA web site. I looked them up and there is alot of good info. Today in the mail I recieved a packet if info. from them with lots of good resources and a newsletter that I'm still reading. Any one out there with a congenital (from birth) heart defect should look them up. www.achaheart.org Debbie

 

[Diane]

Debbie,
You're Welcome! Between ACHA and VR.com, I was able to stay sane while waiting for my PVR. There are several people like me that are on both boards.

I think it is very important for anyone with a congenital heart defect to seek out an ACHD doc. There are too many instances of CHDer's being told they are "fixed" or getting misdiagnosed by regular cardiologists. Actually, I was one of those people. Even repaired, our hearts are very different from everyone else's.

Take Care!
~Diane

 

[Lynlw]

You're welcome. They are having their National Conference in Philly in 2008 (they have them every 2 years), if anyone decides to go, let us know, we'll be going since it's 20 min away. I agree w/ What Diane said, ACHA specialists are a pretty new speciality but there are getting to me more clinics. They understand how being an adult w/ CHD can effect more than just your heart.

 

[Lynlw]

debbi, Did you join the forum? they are really friendly and helpful.Lyn

 

[Guest]

There are several people like me that are on both boards.

*raises hand*

Count me as one of those!

I'm also a member of ACHA.



Cort:34swm."Mr Monte Carlo.Mr Road Trip".pig valve.pacemaker
WRMNshowcase.lego.HO.model.MCs.RT.CHD = http://www.chevyasylum.com/cort
"Tell them we're survivors" ... Rascal Flatts ... 'Life Is A Highway'

 

[surfsparky]

We've just joined too.

The more information the better. Thanks for the link!