Well My Cardiac MRI has been scheduled

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Harrybaby666

Harrybaby666

Well-known member
Joined
Jul 1, 2003
Messages
2,541
Location
NH-Further North
Hi Gang,

I just wanted to let you all know that I got my date for the Cardiac MRI, and I will be returning to Boston to Beth Israel Hospital on Friday October 5 at 2pm for the test. I then return to the New England Medical Center on November 2 for the results. I hope they find out what's going on, as I have been getting exhausted very easily lately and my blood pressures have been all over the road lately with my highest being 248/148 for a very short period of time. My pulse at this point was 113 bpm, and this is obviously when the chest pain and pressure and nausea and weakness set in. Anyway, I just wanted to let yall know and I hope you will say a little prayer for me that they find out what's going on and get me on the right track to recovery. Harrybaby:eek: :D :eek:
 
Hugs, prayers and good thoughts coming your way, Harry. Please let us know how things turn out.
 
Harry,

GOOD LUCK with that MRI ... glad you have a date now for that.

Thoughts/prayers coming your way, of course.



Cort:33swm."Mr Monte Carlo.Mr Road Trip".pig valve.pacemaker
WRMNshowcase.lego.HO.model.MCs.RT.CHD = http://www.chevyasylum.com/cort
"Tell them we're survivors" ... Rascal Flatts ... 'Life Is A Highway'
 
If that doesn't tell them something, then I don't know what to think. You got it my friend.
 
Good luck Harry. I've got my review tomorrow morning. I had an ehco done 2 weeks ago.

Something I have done over this past few months is take little snippets of posts/articles on this site and printed them off. I've started to put together a file of info. on things such as: On-X valve, INR Home Testing, BP medication, questions I should be asking my cardio, previous echo reports etc' etc.

I intend to bring it in with me tomorrow :D
Just a thought.
 
Thanks for letting us know the date, Harry.
I'm anxious to hear what the test says, and I know that you are too!
Keep us posted.:)
 
Well now....I have already found out something...

Well now....I have already found out something...

I have to go tomorrow for my annual "Autonomic Neuropathy" Ansar Test, which will tell them how bad that form of Neuropathy is that I have. It seems that the Autonomic Neuropathy affects ALL the nerves that control all the involuntarily controlled organs The heart, the kidneys, the lungs, the bladder, and swallowing, blood pressure and other things that a person does not consiously control-the body err, the autonomic nerve system does it. This could be part of what's going on, and I am hoping that I will know something from this Ansar test before I head down to Boston again, so that I have something to tell them. GEEEE...Isn't it JUST Amazing how the doctors in my area can suddenly come up with something right when they find out I am going to see a REAL Doctor that actually cares? Baffling...Just Baffling.....:confused: :eek: :D :eek: :confused: Now here's the really confusing part....No one knows how to treat this Neuropathy....ISN'T THAT JUST A TOTAL SURPRISE.....LORD I WISHED I DIDN'T LIVE HERE. Harrybaby:(
 
Harry... I'm sorry to hear all the problems going on.. Hope you get some answers and relief soon.
 
Thanks Marky....It Just seems like....

Thanks Marky....It Just seems like....

If it's not one thing its another...If my heart doesn't act up, my lung diseases act up, if it isn't the lung disease, it's the mobility issues....if it's not that, it's my kidneys...One gets aweful tiresome of being sick all the time. I have tried not to talk much about things, as I know it's too much to bother people with, but this is how I truly feel about now. Harrybaby:(
 
Harry, has anyone mentioned dysautonomia to you? It's a disfunction of the autonomic system. My bro had it. Do you ever pass out?

Best wishes for the test you are about to have. Let us know.
 
I have what they calle "Autonomic Neuropathy" Hensy...

I have what they calle "Autonomic Neuropathy" Hensy...

hensylee said:
Harry, has anyone mentioned dysautonomia to you? It's a disfunction of the autonomic system. My bro had it. Do you ever pass out?

Best wishes for the test you are about to have. Let us know.
Click to expand...

which, I just read up on, and dysautonomia is part of it. I just had an Ansar test done, so I am just waiting to hear the results....

How did they treat your brother for this? Not too many doctors in my area seem to know how to treat it "ahem, they don't seem to know about how to treat alot of things...lol" so I am hoping I can tell the heart doctor something when I go back to Boston. Any help, as you know is greatly appreciated. Huge Hugs coming to you from me. Harrybaby:D :D :D
 
Harry, there is no treatment for it. The doctors can only treat symptoms. The way we found out was one of the times Richard was in the hospital another doctor who has it diagnosed Richard. This doctor had a practice in internal medicine, but he'd pass out all the time and you really can't do that in stores and in front of patients, so he had to retire. He finally went back to school to study it and got a specialty in dysautonomia. He was very supportive of Richard.

Dr Rich wrote an article about it some years ago. If you type in dysautonomia in About.Com, it might show up. Or just type it in Google and you may find lots of things about it. There are several names for it as you will find if you read Dr Rich's article.

It answered lots of questions for us about Richard, but gave no encouragement in treating the disease - just symptoms. Richard had heart issues, non-classical Parkinson's, peripheral neuropathy, - lots of things but all of it might have been part of the dysautonomia - which is failure of the autonomic system.

I don't mean to discourage you with this. Maybe it will give you a new avenue to explore - or at least ask about. Many doctors have never heard of it, but it's always been there.
 
Harrybaby666 said:
If it's not one thing its another...If my heart doesn't act up, my lung diseases act up, if it isn't the lung disease, it's the mobility issues....if it's not that, it's my kidneys...One gets aweful tiresome of being sick all the time. I have tried not to talk much about things, as I know it's too much to bother people with, but this is how I truly feel about now. Harrybaby:(
Click to expand...

It sure is hard when the body just doesn't do what we want it to do!
Sounds like you are caught in a snowball of medical things..
maybe there is a link? I sure do hope that you can get some answers!
(((Harry)))
 
Whoops...I missed this one Hensy...

Whoops...I missed this one Hensy...

hensylee said:
Harry, has anyone mentioned dysautonomia to you? It's a disfunction of the autonomic system. My bro had it. Do you ever pass out?

Best wishes for the test you are about to have. Let us know.
Click to expand...

The last time I passed out, to my knowledge anyway, was when I had my huge kidney stone smashed up at Dartmouth Hitchcock and I stood up out of the wheelchair to get into the car to come home, I dropped to the ground and passed out....Everything just went black. I do have to watch out when I am standing up as I do get light headed. I am also wondering, because I have been reading up on this Disautonomia, whether or not I might have MS. Now mind you, I am not trying to be catastrophic about this, but from everything I have read, it seems consistant with what I have been going through. Besides the Heart Doctor's in Boston, I am going to see if I can see a neurologist and pray like heck that it's not MS...Harrybaby:eek:
 
Hi Harry, Im glad to see that you have an appointment for your MRI, and it will be a relief Im sure, to get some answers. I know how you feel, regarding keeping your chin up, when your faced every day with ill health, and the best you can hope for is that you are no worse than yesterday !! Its very difficult.

Anyway, hopefully this MRI will be the start of you getting some answers, and some relief from your symptoms. You are in my thoughts and prayers. Hang in there and best wishes for the 5th. :cool:
 
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