Status Update - aortic root and Starr valve replacement

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D

Donald

It's been a while since my first post in July New Member - Introduction that outlines the problems with my enlarged aortic root.

I met with my cardiologist on Aug 4th. He said he presented my case to a group of cardiologists and surgeons he meets with, and they all agreed that I should move forward with surgery to replace the aortic root and valve.

Here is a picture of the Aaorta and it's relationship to the aortic valve. One bit of good news I learned, is that my enlargement (Aneurysm) is between the aorta valve and the three upper torso arteries at the top of the arch. This means a less invasive surgery since the torso arteries will not have to be reconnected.

Moving forward, my cardiologist admitted me into the local hospital on August 6th for a Cardiac Cathererization; standard operating procedure for open heart surgery. Normally, this is a one-day out-patient procedure, but since I am on a blood thinner (Coumadin), it is necessary to go off the thinner, and use Heparin to prevent clotting in my Starr valve; I was tethered to an IV for the entire 6 day hospital stay. The good news is that my arteries are clear.

The big question is always, should I have this surgery? I ask my cardiologist what I should expect if I choose not to correct this problem. A tough question for sure, but he said 1-3 years. I have decided to put my faith in the Starr-Wood surgeons in Portland Oregon. Dr. Starr performed my original surgery nearly 30 years ago. He's my hero!

At this time I am waiting to hear from Starr-Wood for an appointment, to see if they agree that I should have surgery, now or later. Wishful thinking - I know! :)

-Don
 
Good luck, Donald, with whatever decision is reached, and please keep us advised.
 
The question is, how big is the aneurysm. If it's 5.0, don't wait any longer. I know some doctors are waiting longer, but I think that is an unnecessary risk of a persons life. Mine never made it to 5.0 and blew around 4.7. I can tell you without doubt that you do not want that to happen. ;)
 
The question is, how big is the aneurysm. If it's 5.0, don't wait any longer. I know some doctors are waiting longer, but I think that is an unnecessary risk of a persons life. Mine never made it to 5.0 and blew around 4.7. I can tell you without doubt that you do not want that to happen. ;)

You're very lucky if you survived a ruptured root. I was told it would be fatal. My aorta measures 5.9 - we've been monitoring it for about 5 years. My current cardiologist said 6.0 is when to have surgery.

Thank you for sharing your experience.

-Don
 
Don I don't know why they've come up with 6.0, but I'm hearing that more and more. It's really hard for me to accept when mine never made it to 5. There are a couple of us survivors, Robthatsme, myself, Creed3 and I think one other and none of us would want to see it happen to anyone else. I have a 3.6 abdominal aneurysm now and if you don't think I'm not paranoid, well think again. I don't care how big it is, I want it gone and now, but they're making me wait on that damn number 5.0 again.
 
Donald,

I was told by my cardio that 5.0 was the trigger point for necessary surgery, and by the time all the prelim work was done and the surgeon went in, it was measured at 5.5. So it can increase more than the monitoring has indicated.

We're all different, so I am not advising, just pulling for successful outcome for you when this can be done.
 
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