Thanks for all your input
Thanks for all your input
This is momshoaf, thank you every one for your responses. To Kaylynn, isn't it the age old cliche of how Dr's so often do not listen to women's complaints. I just know something is wrong even though nothing overly serious has shown up on any of the many tests done. For example, a few weeks back I took my 2 youngest to McDonalds, I get out of my seat in my hitop van and go behind my seat to unbuckle my then 9 month old and pick her up, I then go to my 6 yr old and unbuckle her, I open the door, step down and we walk across the parking lot, open the door and get in line. It was then, when we stopped tha the symptoms overtake me, this particular time, they were so bad that I was breaking out in a sweat trying to keep my composure and not pass out as I so felt like I was going to do. I was so terrified because of my children being with me, I was determined to hang on. But this has been the state of my life having episodes like this every single day over and over for the past 7 years now. These symptoms wipe me out with unbelievable fatigue even though I sleep well (considering having an nursing infant) and take naps alot.
I live in South Orange County, CA. As I said before I am on medi-cal and there is a severe limit of choices of DR's, especially a specialist. To Karlynn, tommorrow I have a list of requests for my Dr., one is to see if a holter monitor could be of some value as my symptoms occur during the course of going through with life. To SHerrin Hutt, I also plan on investigating the benifits of having a TEE done but I freak to think of something going down my throat. I gag brushing my teeth! I'd make a great bulimic. I dry heave when the dentist has to put one of those goop filled molds in my mouth to make an impression, shoot, I gag when they put those xray cards in my mouth! To Nancy, I did check out on the PPH(primary pulmunary hypertension) caused by phen-fen and did have a rt heart catheter. I showed normal pressures but I was disappointed that they did not allow me to work up to the point of having symptoms. THey had me hold one liter IV's in each hand and lift them up like as in weight lifting. Please, I was a young strong healthy person before this heart damage, it does take effort to bring the symptoms. That is the point I keep trying to make to the DR's, what is the point of only testing me at rest when I have no symptoms, My life requires me to do more than lay around doing nothing, I need to be able to move around, bend down pick things up push things around wrestle with my kids,scrub the counter, rack the yard. All these exertions are too much for me to do. If any of you know of anyone here in So. Calf, maybe I could call them and plead my case, maybe they can arrange to take my medi-cal or something. I just know that I need to find out for sure what may be going on before my settlement comes through. I need to be compensated for what I will need to deal with later on.
Andrea, I read your story, how terrible a thing to have to go through. The thought of me ever having a mechanical valve put in me is a scary thought but the trade off of having my life back helps push that fear away. By the way, you mentioned that you gained alot of weight after surgery, what caused this? Do you have to take those anti-rejection drugs, are they the cause? This is a huge concern for me, I just can't gain any weight, I am not really heavy but have had to live with the fact that I will never be a size 5, I can live as a size 8 but no more!!! I am too short.
Any more of you out there that want to share your stories and findings with me will be greatly appreciated. Has anyone out there experienced what I have, namely, have pretty bad symptoms but the echos and other tests have not shown damage enough to justify the level of symptoms and did you ever find out and find a fix for your distress? I refuse to believe that my body is not warning me something is seriously wrong, I have always been so sensitive to any changes in my body which upon investigating find the source, as opposed to being "all in my head" I am not the sycosematic(spelling?) type. Gotta go, thanks again, no time to proof sorry for any errors.