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briansmom

Well-known member
Joined
Nov 28, 2006
Messages
805
Location
San Diego, CA
Hopefully Brian and I will be on a plane to CC tomorrow. He is having a bad night and has had a bad weekend so I really hope we make it on the plane and can get some answers. He starts bright and early Tuesday morning with tests and doctors.

He is seeing 6 doctors so far and having a renal ultrasound, carotid ultrasound, echo and ekg.

The doctors that he is seeing are:
Dr. Gornik - vascular specialist, fibromuscular dysplasia specialist, cardiologist
Dr. Svensson - cardio thoracic surgeon, connective tissue disorder specialist

Also seeing a cardiologist, nephrologist, geneticist and a rheumotologist

Please pray for answers.

Also, Shane is doing much better. He is going to school tomorrow.

Thanks for all of your prayers and good wishes.

I will update as soon as I get some opinions.
 
Hopefully Brian and I will be on a plane to CC tomorrow. He is having a bad night and has had a bad weekend so I really hope we make it on the plane and can get some answers. He starts bright and early Tuesday morning with tests and doctors.

He is seeing 6 doctors so far and having a renal ultrasound, carotid ultrasound, echo and ekg.

The doctors that he is seeing are:
Dr. Gornik - vascular specialist, fibromuscular dysplasia specialist, cardiologist
Dr. Svensson - cardio thoracic surgeon, connective tissue disorder specialist

Also seeing a cardiologist, nephrologist, geneticist and a rheumotologist

Please pray for answers.

Also, Shane is doing much better. He is going to school tomorrow.

Thanks for all of your prayers and good wishes.

I will update as soon as I get some opinions.



Deanne your one very strong lady and glad to read Shanes going to school tomorrow @ much better im sending out good vibes,thoughts and lots
and lots of prayers from Canada....never stops and your a hero ((hugs )) at close here and be reading welcomed updates when your able
Have a safe trip.....GodBless give those boys a hug too....BYE
 
Answers you seek will probably be found at CCF. I'm sorry that I'm 1 hour away from there and cannot travel up to see you. Prayers are certainly being said. Let us know when you can.
 
Deanne, I wish you the best and hope that you are finally able to get some answers so that Brian's quality of life can improve greatly. Safe travels.

Kim
 
My prayers go with you & Brian tomorrow Deanne. I hope that all your questions get answered & a solution can be found for Brian's situation. I feel so bad for that kid. Life just isn't fair!

Godspeed to you!
 
Very best wishes you get some answers from these fine doctors and a good treatment plan. You and Brian will be in my thoughts and prayers.
 
Deanne, I will be keeping you and Brian in my prayers as you travel to Cleveland and pray that you will get all the answers needed to help Brian. LINDA
 
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