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Emma
hi everyone, I have looked on this site before but never posted on it.
I have a three year old daughter Chloe who was born with complete AVSD. To cut a veeeeery long story short she has had 4 ops (3 open heart) and we very nearly lost her at one point! but now has a 25mm On-X prosthetic mitral valve, which she has had since July 2000. Obviously she's now on warfarin to decrease the chance of blood clotting on the valve. Since her surgery Chloe has gone from a weak, miserable child to the most energetic, loud, cute little girl I've ever met! The valve has done wonders for her, but what I'd like to know is if anyone else has a young child who has had this procedure too?? I only know of one other child who's had an MV replacement and no-one else who has an On-X valve (Chloe was the first UK child to have it sucessfully). I would love to hear of any similar cases or perhaps older children who have lived with these valves for a while to see how they cope in older childhood with it all??
Thankyou for your help!
Love Emma
xxx
I have a three year old daughter Chloe who was born with complete AVSD. To cut a veeeeery long story short she has had 4 ops (3 open heart) and we very nearly lost her at one point! but now has a 25mm On-X prosthetic mitral valve, which she has had since July 2000. Obviously she's now on warfarin to decrease the chance of blood clotting on the valve. Since her surgery Chloe has gone from a weak, miserable child to the most energetic, loud, cute little girl I've ever met! The valve has done wonders for her, but what I'd like to know is if anyone else has a young child who has had this procedure too?? I only know of one other child who's had an MV replacement and no-one else who has an On-X valve (Chloe was the first UK child to have it sucessfully). I would love to hear of any similar cases or perhaps older children who have lived with these valves for a while to see how they cope in older childhood with it all??
Thankyou for your help!
Love Emma
xxx