My sitch
My sitch
Bad Mad said:
Hey Bionic Man
Out of interest what age are you?
If you have Marfans, is your Aorta likely to dilate again or will this correct the problem?
Interesting that you are playing basketball again. I assume you are taking warafrin? Do you play competitively i.e. for a team?
I suppose the risks are small as B'Ball is pretty much a no contact sport.
I'm 37. I play basketball just with family and friends when they come by. We have a tradition of playing whenever we have a family gathering. Most of the guys are younger than me but are all tall like me and so it gets quite intense.
As for other sports I do Karate and am having fun with that. I have sparring limitations right now and may need some extra gear but some day I hope to even compete in that as well as the kata forms.
I expect some day my aorta may dilate again but I'm on toprol which significantly lowers that risk. The doc replaced my ascending and decending aorta with a graft. It's perhaps possible for the remainder of my decending to give out but from what I understand the decending is less critical and comes with a little more warning and is easier to repair in an emergency. I get echos every 6 months to check anyway.
Also it took me 20 + years to get this bad, the doc thinks it's unlikely that it will happen again. I'm naturally so paranoid and so careful (obsessively so) with the surgery I realized that I've been such a careful person for so long and I was still going to die of some stupid thing so why not just live and enjoy it? I have kids and I worry about not being there for them but I also don't want them to grow up with a dad that does nothing.
Prior to surgery (no warfarin/coumadin) I nearly had a fatal nose bleed.. bled for 3 hours even in the ER with 6 people hovering around and cursing because after multiple cauterization attempts I was still gushing blood, so much so that they couldn't even tell where it was coming from. That scene freaked me out so bad I could hardly sleep for months knowing that I could be dead by morning if I started bleeding at night. Needless to say that one would expect now that I'm on warfarin that I'd be crawling the walls waiting for the moment I would start some kind of fatal bleeding. Rather, it's been the oposite. It's been over two years now I guess and I feel better than before in every way and it's all been because of my life-choice.
Since both of those incidents I just kinda feel like that you can kick the bucket just from doing nothing so why not do something you love and enjoy it while you can. If I die doing what I love, I guess my boys may be mad at me, maybe they'll even hate me for it. I hope that some day the'll realize that "dad must have loved me because he played ball with me, he must have loved me because he LIVED and didn't just stay inside all the time." The lesson I hope that I can teach them is to just live and make a difference. Enjoy their life and the time they are given.
After so much of my life has felt out of my control I finally feel like I'm really me. I feel happy, confident, fit and want to feel that way right up to the minute I keel-over doing something I love.
Perhaps I will not live long but at least I'll LIVE.
Please realize that I'm not advising anyone else to do the same, I'm just saying that personally I'm happy now that I have made my choice.
David