Cardiomyopathy Clinic At New England Medical Center...

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Harrybaby666

Harrybaby666

Well-known member
Joined
Jul 1, 2003
Messages
2,541
Location
NH-Further North
Hi Gang,

I just thought that I would let you all know that I have finally decided to go to Boston to the New England Medical Center's Hypertrophic Cardiomyopathy Clinic to get some answers on my heart issues as I have just had it with the Doctor's in my area (as Ross had said to me one day, in another post, that I needed to leave the state due to the bad doctors) and I am still not feeling good, and want to get on the right track. My procrastination up to this point has been that I am terrified to drive in Boston (or Mass for that matter) but I have come to the conclusion that I have no choice but to if I am going to get things straightened out. I don't know whether they will be able to tell me anything about my valves, but I figure they have got to be affected somehow, somewhere along in the cardiomyopathy process.

Once again, I have been fighting this depression, and I think that the only way I can snap out of it, is to keep fighting. I am going to ask if you all could keep me in your thoughts and maybe a prayer as I try to nail this down....Thanks in advance for listening and any prayers...Harrybaby:)
 
So glad you are going to Boston, Harry and you will be in my prayers and thoughts.
 
I think you are making a good decision. I have HOCM and Severe MVR, I have been seeing a specialist at Mass General for it. They really do have some of the best Doctors. They took great care of me. I have never felt better. Good Luck!!
 
I think you will be happy that you went to Boston. There are some of the best doctors there.
As far as driving into Boston, I know exactly what you mean. If I were you, would probably have someone drive me.. If you don't know the way, it is not fun. But no matter how you get there , going to see a doctor at a major medical center there is a very good idea. I had some surgery done at Deconess in Boston many years ago and they were wonderful.
Good luck and please keep us posted.
 
Count us in to support you in prayer. Sounds like you're making a step in the right direction...all the best.
 
Wishing you some good answers and a new perspective from the new doctors.
 
Harrybaby666 said:
Hi Gang,

I just thought that I would let you all know that I have finally decided to go to Boston to the New England Medical Center's Hypertrophic Cardiomyopathy Clinic to get some answers on my heart issues as I have just had it with the Doctor's in my area (as Ross had said to me one day, in another post, that I needed to leave the state due to the bad doctors) and I am still not feeling good, and want to get on the right track. My procrastination up to this point has been that I am terrified to drive in Boston (or Mass for that matter) but I have come to the conclusion that I have no choice but to if I am going to get things straightened out. I don't know whether they will be able to tell me anything about my valves, but I figure they have got to be affected somehow, somewhere along in the cardiomyopathy process.

Once again, I have been fighting this depression, and I think that the only way I can snap out of it, is to keep fighting. I am going to ask if you all could keep me in your thoughts and maybe a prayer as I try to nail this down....Thanks in advance for listening and any prayers...Harrybaby:)
Click to expand...

I am so glad to read that you have a plan of action, Harry! Way to go!:)
I know the thought of Boston traffic must be daunting, but I know you will be able to figure out a way to get there and get some answers.
I'll keep you in my thoughts and prayers.
Mary
 
I'm glad you are going there and hope you are able to get good answers.I don't know f this is possible, but i didn't want to drive to boston because it is like 5-6 hours and I have a bad back. So we ended up taking a train. We stayed for 2 nights because Justin's appt started early in the morning and found between the public transportation and cabs it was pretty easy getting around Boston w/out our car. Would it be possible to get a train where you live, or even drive to a train station outside Boston and take the train in town?
 
So happy to hear you are going to come to Boston for consultation. Such fine doctors throughout the city in our many hospitals.

If you can get a train to Boston's South Station, it would be very easy for you to get to various hospitals/doctors by either public transportation or taxi. Boston is a busy city but not that huge. I do admit it is hard for someone to drive around (and park) here if they are not familiar with the roads.

Good luck.
Let us know how you make out.
 
I Agree Ross....I HAVE HAD IT....

I Agree Ross....I HAVE HAD IT....

[:confused: :D QUOTE=Ross]Let me know how it goes. I think you've screwed around with your local folks long enough.[/QUOTE]

I talked with my neighbor, who is a nurse and I called Medicaid and spoke with a nurse and they both agreed that I should see someone in Boston...Cynthia, my neighbor said that the Dr. that I just got rid of, Dr. Morford didn't even want to see me, let alone check me for the microvascular hypertension which Kim C had mentioned to me in an earlier post...all I know is this....there are nights when I go to bed, and I wake up with my heart ready to go drag racing and the chest pain and pressure linger on after this, and even after I take Nitro, then there are days when I do anything exhertional and I just get soooooo wiped out and short of breath and when I even do vaccuum out my car and clean it the best I can, I am left feeling absolutely aweful. Hot and Humid Days I just cannot breath even with the simplest tasks.

I feel really good about making this decision, and Tobagotwo, I am considering taking the train in. I asked about it while I sought out the appointment earlier today. I can't wait to see what happens next. Hopefully they will help...Harrybaby:D
 
Hi,

I would like to share this site with you. You will be able to look up the best hospitals in your area, or Boston, for the type of condition that you want care in.

http://health.usnews.com/sections/health/best-hospitals

Good luck in Boston. Listen to radio programs that give good updates on traffic conditions. Hopefully you can avoid any driving during rush hour. Also, if you have Sirius Satellite radio, they have a great live traffic update station for Boston. Another helpful tool would be a GPS direction unit. They cost around $300. You type in the address and it will direct you as you drive as to how to get there.

Rob
 
Good luck, Harry! You will be in my thoughts, for sure. Keep us updated.

I think you've made a great decision!!

:) Marguerite
 
I Have My Appointment For New England Medical Center...

I Have My Appointment For New England Medical Center...

I go into see Dr. Maron on August 31st at 2pm and I am thinking that I will be taking the train into Boston as I have done some checking and it's sounding like the best way for me to go....This should be interesting...Harrybaby:D
 
Cardiomyapathy Clinic at Boston

Cardiomyapathy Clinic at Boston

Hi Harold L,

I've had depression and I know its no walk in the park, so my prayers go
out to you. I hope things improve for you.
 
Well, I have my appointment and I am taking the train in...

Well, I have my appointment and I am taking the train in...

I go to the Tufts New England Medical Center on August 31st and I am taking the train in, as I am just not feeling well enough to deal with Boston Traffic, and I decided to take the train also because once I get off at North Station, all I do is transfer to the MBTA Orange Line and it takes me right in front of the medical center. Now I can't wait to see the doctor's. I found out that I will be seeing a minimum of 3 doctor's while I am there, so I have the destinct feeling that they are thorough down in Boston. Just wanted to keep yall posted. Harrybaby:D
 
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