BAVgenetics is a partnership between Investigators at Brigham and Women’s Hospital, Massachusetts General Hospital and the Harvard-Partners Center for Genetics and Genomics, dedicated to discovering the genetic causes of bicuspid aortic valve disease and associated aortic disease.
http://www.bav-genetics.org/index.html
The Goals of the study are here: http://www.bav-genetics.org/goals.html
I would urge those with Bicuspid Aortic Valve to consider participating in the study. There's a questionnaire to fill out, consent for medical records to be provided, and then they send you a plastic vial for a saliva sample that you mail back to them. Its that easy. The registration information is found here: http://www.bav-genetics.org/registry.html
Your participation might help in identifying the gene that causes BAV and thus help someone else, and perhaps your own family. The FAQs on the site will probably address any other questions you might have: http://www.bav-genetics.org/faqs.html
Note: I have enrolled in the study but am not associated with BAVgenetics and am not receiving any compensation or any other renumeration for this post.
http://www.bav-genetics.org/index.html
The Goals of the study are here: http://www.bav-genetics.org/goals.html
I would urge those with Bicuspid Aortic Valve to consider participating in the study. There's a questionnaire to fill out, consent for medical records to be provided, and then they send you a plastic vial for a saliva sample that you mail back to them. Its that easy. The registration information is found here: http://www.bav-genetics.org/registry.html
Your participation might help in identifying the gene that causes BAV and thus help someone else, and perhaps your own family. The FAQs on the site will probably address any other questions you might have: http://www.bav-genetics.org/faqs.html
Note: I have enrolled in the study but am not associated with BAVgenetics and am not receiving any compensation or any other renumeration for this post.