Hi folks
I previously posted in another thread that I've been selected to participate in a new study being run in Canada. This came about after referral to a surgeon for a consult. I thought I would start a new thread that I could update periodically on the study progress for everyone's information.
This study is being commissioned based on the recent positive results that Losartan was found to have on patients with Marfans. The purpose of the study is to evaluate a potential role for beta-blockers or ARBs in delaying the progression of aortic dilatation in patients with BAV. I will either be given Atenolol, Telmisartan or a placebo and the study is double blind so I wont know what I'm taking. They are recruiting over 400 people in Canada, 20 or so in Toronto. Its 5 years starting with a 3 month and 6 month follow-up then yearly thereafter. My first appointment is Jan.24th for MRI, echo and other tests. My current status is BAV with trivial regurg, no stenosis and aortic root 43-45 (to be confirmed with MRI since I had two different echo results).
I'm kind of looking forward to this as it will ensure I'm closely watched and I may benefit from the drugs. I'm also a little scared given my anxiety with my yearly appointments but maybe this will desensitize me and make the visits easier.
Anyway, will keep you posted.
I previously posted in another thread that I've been selected to participate in a new study being run in Canada. This came about after referral to a surgeon for a consult. I thought I would start a new thread that I could update periodically on the study progress for everyone's information.
This study is being commissioned based on the recent positive results that Losartan was found to have on patients with Marfans. The purpose of the study is to evaluate a potential role for beta-blockers or ARBs in delaying the progression of aortic dilatation in patients with BAV. I will either be given Atenolol, Telmisartan or a placebo and the study is double blind so I wont know what I'm taking. They are recruiting over 400 people in Canada, 20 or so in Toronto. Its 5 years starting with a 3 month and 6 month follow-up then yearly thereafter. My first appointment is Jan.24th for MRI, echo and other tests. My current status is BAV with trivial regurg, no stenosis and aortic root 43-45 (to be confirmed with MRI since I had two different echo results).
I'm kind of looking forward to this as it will ensure I'm closely watched and I may benefit from the drugs. I'm also a little scared given my anxiety with my yearly appointments but maybe this will desensitize me and make the visits easier.
Anyway, will keep you posted.