Back On Track For Paravalvular Leak Closure

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Blake777

Well-known member
Joined
Dec 28, 2007
Messages
206
Location
Oklahoma City, Oklahoma
I am back on track for my paravalvular leak closure in Texas at Baylor Scott. Some of you may remember I told you I had a leak and they were going to send me to Texas or it may have been an ablation I was suppose to get for my afib, can't remember which one. One cardiologist here in OK was telling me I needed an ablation and had put in a pacemaker for my uncontrollable afib, she has now moved back to the UK. Another cardiologist in the same building but in heart surgery clinic said I needed surgery for a leak around my onx valve and that is what is causing the afib and I also have moderate to severe leak in tricuspid valve. Well turns out I do need surgery for the leak and I was scheduled to have something done about it last year but with covid and me trying to contact cardiologist with no luck to see what was going on with my procedure. This was after July 2020 when I had my right heart cath. Someone had called me from heart hospital here in Oklahoma and asked me did I still need a cardiologist. Well that same clinic was a clinic I had called like a year before to if I could get a second opinion, so I did not return the call. Well turns out that was the call about the procedure that was going to be done here in OK at heart hospital where they do not even do that many of these procedures. So another 4 months go by and in the mean while I am still trying to see what's going on about procedure. So primary doctor sends something to cardiologist over PC in regards to what is going on ( he's in the same building too), still no answer as to when I would be doing anything, then pacemaker clinic in the same building called, no results. Guess you see this place is unorganized and somewhat unprofessional in my opinion. So fast forward I finally went back for yearly TEE and that's when cardiologist in surgery clinic says again I need to go to Texas to get a paravalvular leak closure and my tricuspid valve is leaking severe and they are saying it could be from a leaflet leak or pacer lead leak. And he goes on to say they may not be able to do it with catheter through my leg, since I have all the other leaks going on. He said they may have a trial for the tricuspid valve but thinks they may have to open me back up. So I am kind of nervous because my last surgery I almost didn't make it. I have to do another right heart cath Thurs my last TEE showed RV peak pressures at 67. Last years right heart cath showed RV pressure 50 x 10 whatever that means, don't know if its worse or not, maybe by 7 not sure. Anyway have to calm down, so worried things are getting a little bad for me now. I read on here and it gives me hope things will turn out okay. Thanks for hearing my nervous rants again. Good luck to anyone in the waiting room and those who have came out my prayers are with you.
 

Blake777

Well-known member
Joined
Dec 28, 2007
Messages
206
Location
Oklahoma City, Oklahoma
Meant to say this is suppose to be a great hospital and part of Cleveland Clinic and Mt Sinai in New York, all are top rated group of expert surgeons. Anyone been to Baylor Scott for heart surgery for what I am going for? Thanks in advance!
 

Blake777

Well-known member
Joined
Dec 28, 2007
Messages
206
Location
Oklahoma City, Oklahoma
I've never been there, but have read good things. Good luck.
Thank you tom. I have heard good things too, think I'm going to be in good hands. Just found out my 84 year old mother has to have major back surgery, she's really bad off, can't walk most times. So now I am scared for her or scared I won't be here when she has it. I can't afford to put it off any longer.
 

charlottekaye

Well-known member
Joined
Apr 4, 2012
Messages
49
Location
georgia
I am back on track for my paravalvular leak closure in Texas at Baylor Scott. Some of you may remember I told you I had a leak and they were going to send me to Texas or it may have been an ablation I was suppose to get for my afib, can't remember which one. One cardiologist here in OK was telling me I needed an ablation and had put in a pacemaker for my uncontrollable afib, she has now moved back to the UK. Another cardiologist in the same building but in heart surgery clinic said I needed surgery for a leak around my onx valve and that is what is causing the afib and I also have moderate to severe leak in tricuspid valve. Well turns out I do need surgery for the leak and I was scheduled to have something done about it last year but with covid and me trying to contact cardiologist with no luck to see what was going on with my procedure. This was after July 2020 when I had my right heart cath. Someone had called me from heart hospital here in Oklahoma and asked me did I still need a cardiologist. Well that same clinic was a clinic I had called like a year before to if I could get a second opinion, so I did not return the call. Well turns out that was the call about the procedure that was going to be done here in OK at heart hospital where they do not even do that many of these procedures. So another 4 months go by and in the mean while I am still trying to see what's going on about procedure. So primary doctor sends something to cardiologist over PC in regards to what is going on ( he's in the same building too), still no answer as to when I would be doing anything, then pacemaker clinic in the same building called, no results. Guess you see this place is unorganized and somewhat unprofessional in my opinion. So fast forward I finally went back for yearly TEE and that's when cardiologist in surgery clinic says again I need to go to Texas to get a paravalvular leak closure and my tricuspid valve is leaking severe and they are saying it could be from a leaflet leak or pacer lead leak. And he goes on to say they may not be able to do it with catheter through my leg, since I have all the other leaks going on. He said they may have a trial for the tricuspid valve but thinks they may have to open me back up. So I am kind of nervous because my last surgery I almost didn't make it. I have to do another right heart cath Thurs my last TEE showed RV peak pressures at 67. Last years right heart cath showed RV pressure 50 x 10 whatever that means, don't know if its worse or not, maybe by 7 not sure. Anyway have to calm down, so worried things are getting a little bad for me now. I read on here and it gives me hope things will turn out okay. Thanks for hearing my nervous rants again. Good luck to anyone in the waiting room and those who have came out my prayers are with you.
Thinking of you.
 
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