I also suffer from anemia .. Although it is not. St jude valve but mechanical no less.I suffer from anemia every 6-18 months, requiring transfusions. After many tests, it has been determined that my St. Jude Mechanical aortic valve damages my red blood cells. Has this happened to anyone else?
If you are still having cylces, get on some kind of birth control. I was on injection of depo, then the depo generic. I am now in the change. I was on depo for excessive bleeding I experienced and to prevent anemia. I was having more problems not from the valve, from the coumadin(warafrin).Me too, but I take iron a few times a week. I’m not sure if it’s from damaged red blood cells due to st Jude valve or the increased blood loss in my monthly cycle.
I can't speak for women, but my Cardiologist put down my anaemia to physical damage of the red blood cells by the closing action of the valve. "It happens with some people". I think he called it "Normocytic-Normochromic anaemia"To everyone saying your St. Judes' valve causes anemia, think again. If you are on Coumadin(warafarin), it will cause you to have anemia, not the valve itself. Please talk to your cardio and he/she can explain how the anemia happens to WOMEN. I was on Depo for more than 10 years after surgery and am not on it anymore since I am going through the change. Please talk to your cardio and gyno.
actually no, its well understood that the mechanical valves can contribut to anemia, but warfarin only contributes if excess bleeding (and I hope @harrietW is well)To everyone saying your St. Judes' valve causes anemia, think again. If you are on Coumadin(warafarin), it will cause you to have anemia, not the valve itself
And don't forget about the young women who are still have the monthly, they have to be careful, due to the fact of the clotting issues can cause anemia. And I never read up on unreliable sources for information. For they can be out of date and unreliable.actually no, its well understood that the mechanical valves can contribut to anemia, but warfarin only contributes if excess bleeding (and I hope @harrietW is well)
Two cases are described in which severe mechanical haemolytic anaemia developed shortly after operation
Summary: The primary mechanism and most common cause of hemolytic disease in patients with prosthetic heart valves are mechanical trauma to red blood cells and paraprosthetic valvular regurgitation, respectively ...Presenting features in patients with this condition include anemia, congestive heart failure, latigue, jaundice, dark urine, and a regurgitant murmur.
note words primary and most common note absence of warfarin. If you read further into that article, it mentions later the specifics of ACTherapy:
Hemorrhage, which may be related to anticoagulant therapy, may increase the need for erythrocyte production even further. The anemia per se may also accelerate the hemolysis since it would lead to both decreased blood viscosity and increased cardiac output, and both these factors increase turbulence of flow through the valve prosthesis.’
I know ... but there are younger women out there who have had mechanicals (and had babies) who didn't suffer this.And don't forget about the young women who are still have the monthly, they have to be careful, due to the fact of the clotting issues can cause anemia. And I never read up on unreliable sources for information. For they can be out of date and unreliable.
Men do not know this cause they do not go through the monthly. Many women on warafarin(coumadin) do become anemic from taking the blood thinner cause of the clotting gets bad and a woman can become anemic from losing more blood during the monthly. I was one who had heavy blood loss every month, only got worse when got on Warafarin. So they put me on birth control shots to control the bleeds. Before the shots, I was beeding badly, since I could not clot with the blood thinner and blood would be everywhere, on the bed and clothes. I am a female and not going through the change, so I am experienced in the mess of not clotting on blood thinners without birth control. You are lucky to be a man and not have had this experience, but never say that a young woman on blood thinners do not experience what I did, cause they are out there. It is not something you brag about, but I had to educated you, woman to a man. So now you are educated on the woman side of using blood thinners during monthly. Have a great day and have a great weekend.I know ... but there are younger women out there who have had mechanicals (and had babies) who didn't suffer this.
Sometimes life is shlt ... I can honestly say that life has dealt me up a few shlt sandwiches. Life isn't fair (fair is a human notion), but perhaps what's evened up the unfairness is that unlike my parents age you and I can have heart surgery and remain living longer (should you choose that).
I once read that "there is no cure for heart valve disease, we only exchange it for prosthetic valve disease"; which unlike heart valve disease is not fatal and can be managed. There are two major pathways for picking prosthetic valve disease: mechanical or tissue; one is managed largely by juggling drugs, the other by follow up surgery. You pays your money and you takes your choice. (which is why I am here : to help people understand those choices)
Myself I've been lucky, I've had three heart operations (greedy bastard aren't I) and through all that never had any horror outcomes (although it was close), I've avoided many of the surgically caused issues (like a nipped AV nerve cluster) or the MSR infection which plagued a friend of mine (full post surgical dehiscence revealing his lungs at the dinner table before his wife and kids).
In contrast to some I know I think most of us (yes, us here) are quite lucky and should be bloody happy about the "ace up our sleeve" science and medicine has given us.