Aortic Valve damage of red blood cells.

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Justmadi

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Joined
Apr 1, 2016
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2
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Wisconsin
I suffer from anemia every 6-18 months, requiring transfusions. After many tests, it has been determined that my St. Jude Mechanical aortic valve damages my red blood cells. Has this happened to anyone else?
 

LondonAndy

VR.org Supporter
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Aug 1, 2015
Messages
296
Location
London, UK
Yes, my St Jude valve does too. It came as no surprise to my cardiologist: I am told it happens with some people, but I haven't needed transfusions. Instead I take iron supplements daily (Ferrous Fumerate 210mg twice per day).
 

DachsieMom

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Mar 3, 2015
Messages
263
Location
CT
Me too, but I take iron a few times a week. I’m not sure if it’s from damaged red blood cells due to st Jude valve or the increased blood loss in my monthly cycle.
 

thomas999

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Joined
Jul 18, 2012
Messages
25
Location
sterling heights, michigan, usa
I have had a St. Jude aortic valve since 1987,going on 32 years and haven't had any problems. I have played sports, and been very active. They have noticed that the count is lower than normal, but never hinted about a transfusion.
 

dornole

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Jan 5, 2014
Messages
616
Location
Minnesota, US
My cardiologist said this could happen even just with my repaired but still scarred and sketchy valve, due to turbulence in the flow. Since I had an endometrial ablation to get rid of that source of blood loss, however, counts have been fine.
 

harrietW

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Oct 24, 2014
Messages
526
Location
Magrath, Alberta, Canada
I suffer from anemia every 6-18 months, requiring transfusions. After many tests, it has been determined that my St. Jude Mechanical aortic valve damages my red blood cells. Has this happened to anyone else?
I also suffer from anemia .. Although it is not. St jude valve but mechanical no less.
I had ohs aortic valve replacement in January/2016. The first 6 mth post op l received roughly 30 transfusions. We are at 3.4 yrs and l have received I've 130 transfusion s easily.
So transfusion dependent .. My bleeds they called Angiodispla through the entire GI system requires alot if scopes either end to cauterize to stop the bleeding which it never does to be honest. So I have refused scopes for the past six or eight months. In the past 30 days alone I've had nine transfusions. The bleeds are exasperated by the warfarin and no rhyme or reason to the start and stop of them. My hg frequently drops to 40 or 50 but hovers around 80 most often making my life Hell.
Our solutions were to replace with bovine this past January but was cancelled due to an attack on Oct thru Jan on my immune system which caused a lot of neurological type symptoms which has yet to be diagnosed. Antibodies due to transfusions. Remember our DNA changes every time we are transfued.
I have never really recovered from my surgery in 2016

Hope you get some resolution.
 

harrietW

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Joined
Oct 24, 2014
Messages
526
Location
Magrath, Alberta, Canada
Thank you vitdoc
I believe l may have misunderstood this post or took it out of context. As to the actual valve causing the damage to red blood cells.
Mine is a completely different matter.
I have had 4 second opinions 3 agree to redo replace mechanical with bovine. One disagrees .. This redo surgery was scheduled for This past Jan but l took very ill for the 2.5 mths prior. We had to cancel so l continue to be transfusion dependent until sure time l am well enough to reschedule.
 

bluefields409

Well-known member
Joined
Jun 18, 2010
Messages
191
Location
Nova Scotia ( formerly ON)
Let me put my glass of ice down (pica party anyone?) and jump aboard as anemia has long been my nemesis. Although no mechanical here as I have a bovine beauty, could it be that calcified "teeth" are chomping down as corpuscles cascade by ?? Anyone else have anemia issues elated to tissue valve or I am off the mark?
Had consult yesterday and as heart/system cannot handle transfusion atm , I duly signed the consents to start iron IV infusions as soon as can be arranged. Hope will be part of the answer and recharge my batteries and send this insidious fatigue packing.

My loving husband said if I had been around with my ice crushing cravings, no icebergs would have been able to cause any risk to any ship.

sigh....
 

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