Sarah_Louise
Well-known member
Hey everyone,
Hope your all well,
I've just been to post op clinic and i don't no what to make of it to be honest, granted my consultant didn't tell me anything i didn't already no RE OHS, but my pulmonary valve is still leaking, my aortic valve is leaking, my conduit pipe/pulmonary artery is narrow and my right sided heart pressures are still high, granted my pulmonary valve isn't leaking AS much and the pressure isn't AS high as it was pre-op, but there isn't a massive improvement as i was hoping for really
my consultant is litteraly waiting for my aortic valve to fail ( which is a waiting game, he reakons about 4 years time, but could be as long as 8 ) then i will have a 'massive' OHS, bigger than any ive had in my past as he says i will 'get a new engine' i will get a:
1. New pulmonary valve
2. New pulmonary artery conduit pipe
3. New aortic valve
Because he could give me OHS now for the pulmonary valve but it would meaning me needing another in about 4 years time, so rather than me rack up the numbers of open heart surgery currently had 4, and put my life on the line twice again, he's hoping my pulmonary will hold out long enough, for him to go yeah the aortic one is ready for replacement, lets go,
He also said the 7 day ECG tape i had on showed some extra beats and arythmia's, but not ones you can die from or cause strokes, but to solve the type i've got, they need to up my dose of beta blocker as im already on 100mg of carvedilol-its a high dose, any higher, it will comprimse the circulation in my legs even more, so where holding out and will have a repeat tape in the coming months,
So yeah I'm a bit hmmmm tonight, it's been a wierd one appointment wise, but hey ho i'm still alive and kicking, (well alive, kicking hurts at the minute lmao!) hey-if i didn't laugh i'd cry
Will post my echo numbers when i get the clinic letter in a few week,
Hope your all doing well,
Sarah xxxxx
Hope your all well,
I've just been to post op clinic and i don't no what to make of it to be honest, granted my consultant didn't tell me anything i didn't already no RE OHS, but my pulmonary valve is still leaking, my aortic valve is leaking, my conduit pipe/pulmonary artery is narrow and my right sided heart pressures are still high, granted my pulmonary valve isn't leaking AS much and the pressure isn't AS high as it was pre-op, but there isn't a massive improvement as i was hoping for really
my consultant is litteraly waiting for my aortic valve to fail ( which is a waiting game, he reakons about 4 years time, but could be as long as 8 ) then i will have a 'massive' OHS, bigger than any ive had in my past as he says i will 'get a new engine' i will get a:1. New pulmonary valve
2. New pulmonary artery conduit pipe
3. New aortic valve
Because he could give me OHS now for the pulmonary valve but it would meaning me needing another in about 4 years time, so rather than me rack up the numbers of open heart surgery currently had 4, and put my life on the line twice again, he's hoping my pulmonary will hold out long enough, for him to go yeah the aortic one is ready for replacement, lets go,
He also said the 7 day ECG tape i had on showed some extra beats and arythmia's, but not ones you can die from or cause strokes, but to solve the type i've got, they need to up my dose of beta blocker as im already on 100mg of carvedilol-its a high dose, any higher, it will comprimse the circulation in my legs even more, so where holding out and will have a repeat tape in the coming months,
So yeah I'm a bit hmmmm tonight, it's been a wierd one appointment wise, but hey ho i'm still alive and kicking, (well alive, kicking hurts at the minute
lmao!) hey-if i didn't laugh i'd cry Will post my echo numbers when i get the clinic letter in a few week,
Hope your all doing well,
Sarah xxxxx
