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  1. R

    Exercise and dizziness

    Hello all! I have had aortic regurgitation for a while and am in the waiting room. As of 5 years ago, the cardiologist told me to avoid "competitive exercise". I had my echo in March and things are stable. I always loved sports growing up. As my son is growing up, with the World Cup around...
  2. R

    Aortic regurg and red blood cells

    I have aortic regurgitation due a bicuspid aortic valve. Since approximately 20 years ago, my bloodwork demonstrates a high bilirubin, both types - direct and indirect. As of 3 years ago, my globulin levels are always just below normal but outside of normal and the albumin/globulin ratio is...
  3. R

    Obamacare, insurance and AVR

    Does anyone know what the impact of Obamacare shall be in getting new insurance policies? My existing one excludes AVR and am wondering whether Obamacare will change this. If anyone knows the impact, please let me know. Regards, Rick
  4. R

    Exercise if BAV, mild aortic dilation

    I have bicuspid aortic valve, moderate or moderate-severe aortic regurgitation (depending on the MD), mild dilation of ascending aorta 3.7 - 3.8 (looks like a sausage where it gets wider and then back to normal). After diagnosis 4.5 years ago, I was told to (i) reduce my weight - check, meaning...
  5. R

    BAV, aortic dilation and strenuous exercise

    I have bicuspid aortic valve, moderate or moderate-severe aortic regurgitation (depending on the MD), mild dilation of ascending aorta 3.7 - 3.8 (looks like a sausage where it gets wider and then back to normal). After diagnosis 4.5 years ago, I was told to (i) reduce my weight - check, meaning...
  6. R

    Check-up tomorrow and Friday

    Writing because I don't really know who to share with in real life that would understand. I am having a thorough check-up tomorrow and Friday I have a bicuspid aortic valve with moderate-severe regurgitation and dilation of the ascending aorta. I have not had aorta measured in 4.5 years and...
  7. R

    Hospital Stay, Lifestyle and Valve Disease

    Hi all, I have not posted in a bit. I am in my early 40s with moderate-severe aortic regurgitation and a bicuspid aortic valve. Was diagnosed 4 years ago at the Cleveland Clinic (took an international flight just to get there) and was told I'd probably need surgery in about 5 years or so but...
  8. R

    Double Dosage

    By error, instead of taking vitamins mid-morning, I took instead a double dosage of my morning heart medicines. I double dosed Altace, ACE inhibitor, and also Coreg, beta blocker. :eek2: I can measure my heart BP and heart rate (can go too low with excess beta blocker) and see if something...
  9. R

    Valve thickening

    Just had an echo and cardiologist stated that while my heart size satyed the , he did notice that my bicuspid aortic valve was brighter and thicker. He stated that he did not think it was calcification but fibrosis. I understand that this is essentially scar tissue that is forming. The noise...
  10. R

    Stage 2 Diastolic function

    I read the report the echocardiogram sent to my cardiologist said. In it, it stated that my heart's diastolic's function is pseudonormal (stage 2). I am 40 and have a bicuspid aortic valve with 2-3+ regurgitation and dilated ascending aorta (3.7 from 3.0 four and a half years ago) Anyone...
  11. R

    Nervous about upcoming annual check-up

    I was diagnosed with a bicuspid aortic valve with 2-3+ aortic rergurgitation; a slightly dilated ascending aorta (3.6 cm) and a slight enlarged left ventricle (5.7) two years ago next week. My diagnosis led to a lot of changes in my life, including a divorce and a desire to lead a new life with...
  12. R

    Lowering Cholesterol Naturally

    I am 40, moderate severe aortic regurgitation, BAV, slightly dilated ascending aorta. Six months ago my MD told me that my LDL (bad cholesterol) was 130, higher than the ideal 100. While not a large difference he suggested considering Lipitor but given that I already take 10mg Altace, Coreg...
  13. R

    Heart check up: What's this mean?

    I am 39, have BAV with 2-3+ aortic valve regurgitation and dilation of the ascending aorta. My cardiologist's notes which he sent me state the following: Heart: PMI 5th ICS LMCL, S1nl, S2nl. Extremities: Grade 2/4 distal pulses bilaterally. Echocardiogram: Among other things it says something...
  14. R

    Chest pain concerns

    I am 39, have bicuspid aortic valve, aortic regurg 2+ to 3+ and a dilated ascending aorta. At work last Tuesday afternoon, I received very stressful news and suddenly developed strong chest pain, enough to mention it and have the other two people I was having a meeting with notice. They wanted...
  15. R

    Side effects or heart related

    I have been wondering recently and have my cardiologits appointment until June 9 about several thinsg I have been feeling...wondeirng if other people have experienced the same things. I am on 10mg of Altace (Ace Inhibitor); 81mg aspirin and was on 30 mg of Inderal (propanol- Beta Blocker) which...
  16. R

    How much to exert yourself?

    I am a 38 year old man, pre-surgery, moderate severe aortic regurgitation, bicuspid aortic valve, mild tricuspid regurgitation, mild mitral regurgitation, and slightly dilated aorta and left ventricle. Have annual check up in 8 months. I read at Biscuspid Foundation to do 30 minute walks per...
  17. R

    BAV, Connective Tissue Disorder and MDs

    In March of 2008, I was diagnosed with BAV, moderate severe aortic regurgitation, mild mitral regurgitation, mild tricuspid regurgitation, mild dilatation of the ascending aorta and aortic root, and the borderline left ventricle size. I was told I shall be monitored in order to determine when I...
  18. R

    Labile hypertension / volatile BP

    I am 38 yrs old and recently diagnosed with a bicuspid aortic valve with moderate-severe aortic regurgitation, a slightly enlarged left ventricle, slightly enlarged aorta (3.6 or so), mild mitral and tricuspid regurgitation. I have been placed on Altace 5mg and an 81mg aspirin, have lost weight...
  19. R

    Sub-acute Bacterial Endocarditis (SBE)

    My MDs suspect that the damage to my aortic valve was caused by sub-acute bacterial endocarditis. I had two months of intermittent fever, profuse sweats and extreme fatigue from Sept 2007 until December 2007. However, my MDs are not agreed on this diagnosis. Whether I get placed on an...
  20. R

    Numbness

    My hands have been going numb at nights when I sleep the last three and a half weeks. Tonight they have started going numb while awake and am feeling a pins and needles feeling on my feet. The timing coincides when I began taking Altace. I started with 2.5 mg and am now at 5mg. My BP...
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