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Just checking in - I had my OHS about 4 years ago to replace my bicuspid and repair my ascending aorta - I posted here on occasion after that, but I haven't posted in about a year - wow how time flies!!!! I'm doing very well, so nothing special to report - I did travel to Iceland last June where...

Hi everyone, I’m celebrating my two year valversary today!!!! Had an echo last week, doctor called me on Friday to let me know that everything looked great – she said my valve looked beautiful!!! Went for a four mile run to celebrate (had to stay inside on the TM, it’s just too hot out) still...

Hi Everyone, Just wanted to pass on some information about a fun get together coming up this fall. A group of people who have all kinds of heart related issues and their families are in the habit of meeting up once a year to run and socialize. This year we’re meeting at the Empire State...

Hey, just wanted to let everyone know that I’m super relieved! I just had my one and a half year follow-up appointment with my surgeon yesterday where he reviewed my MRI and echo. After reviewing my results, he walked into my room beaming out these words: “Rachel, you have no restrictions, go...

Hi everyone, Last dental visit 3 months ago the dentist noticed a spot on my gums that are bleeding easily, but the area was not inflamed or infected so she left it alone. Since then I’ve noticed some bleeding every once and a while after I floss (and I’ve thought that this is no big deal)...

Hi everyone! Today is my one year valversary! Yesterday I celebrated in Chicago at one of the Adult Congenital Heart Association’s fundraising walks. This morning I had a nice walk on the pier at Lake Michigan, just so thankful for my life and so grateful to my surgeon Dr. Hooker and the...

I just want to say how much I appreciate this forum! I’ve been following for a short time, but I’ve already found some incredible information and support here. I’m actually fairly new and I haven’t introduced myself yet. I’ve only known about my condition for about 14 months but I’ve already...

Hi, Sorry if I’m not putting this post in the right category, I’m new. July 15 will be my one year anniversary from OHS and I’d like to spend it participating in the Adult Congenital Heart Walk July 14 in Chicago. If anyone was already planning on walking this event, my husband and I would...

I have never posted before, but I’ve been reading the posts in the past couple months and feel really comfortable asking my question. Some background on me - I found out 13 months ago that I was born with a bicuspid aortic valve. At that time, I also learned that I had a 5cm ascending aortic...