GEckley Update

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geckley

Well-known member
Joined
Sep 9, 2008
Messages
311
Location
Frederick Maryland USA
Another brief update.

After the bouts of afib, about midnight Saturday night/Sunday morning, Ghon's HR went from 118 to zero for 7 seconds. Then picked up in the low 50s. He said he felt a bit dizzy and we were going to call the nurse (I'd stayed the night) and the nurses came in. Apparently, the external pacemaker he was connected too didn't kick in at all. There were lots of wire adjustments, new batteries and discussion of more invasive techniques, when Ghon coughed and shifted - low and behold, the pacemaker started working. If I understand correctly, he's only pacing V not A. Earlier Saturday morning, he'd stopped the amiodarone and was put on metoprolol. That was stopped after this episode.

Sunday he was tired most of the day and went back and forth between being externally paced and pacing on his own - namely when he walked. About 4pm he had nearly an hour of back and forth before his heart became the dominant force. However, the impulses aren't originating in the atrium, but in the ventricle, so he still has issues with the rhythm.

I'm not sure about Sunday night, but over he course of the day Monday, he had no external pacing. Pacemaker is set to kick in at 50; he's generally in the 57-62 range, 68-72 when walking.

Last night (Mon) he did slip low enough that the PM kicked in. He talked to the NP and the electrophysiologist, and it looks like he will be having a PM installed tomorrow. He was really hoping to come home Thurs/Fri, so we aren't sure how much this will impact his coming home. He is extremely upset about the idea of a PM and I think is suffering from some depression as a result. We had a brief consult about an hour or so ago with the EP, who told him about the procedure and that it would be under sedation. He asked if Ghon had any breathing problems, and he answered no. I reminded him of his pulmonary hypertension and apnea - and so now he might have to go under full anethesia. The idea of a ventilator again is not high on his list of good things, but the EP said it comes out before he wakes up.

We were also told that because of his history and how the heart was repaired this time, that there may be some difficulty with the surgery - some modifications from the normal procedure may be required. We'll find out a time a bit later today.

Anyone have any words of wisdom? Similiar experience? He's felt he's only heart horror stories here about pacemakers - got any positives?

Thanks -
Kim (Ghon's wife)
 
Kim, I'm so sorry that Ghon is having these problems and wish I had some words of wisdom for you. I have no experience with pacemakers, but I know others on the forum have had them inserted both immediately after surgery and after getting home. I am sure some will be along to reassure you both- he is not alone!! I will keep you both in my prayers and hope that this goes easily and he is home by the weekend. Godspeed!
 
First and foremost, I wish you and Ghon well. My situation is a little different as I had my pacemaker implanted last year and will be having MVR in December or January of this year...but I don't even know I have one. The implant was a breeze and I've had no problems since. Given Ghon's age, I'd request a sub-muscular impant (placed in the muscle) -- it doesn't stick out that way...don't even know you have it. Please give him my best.

Dee
 
I had a pacemaker installed because of a too-slow heartrate - it, too, jumps in at 50 and tops out at 130 - it is absolutely fine - it is NOT a problem - and you have the comfort of knowing it will kick in if need be. It only took a 1/2 hour to put in, under light sedation, and was only a little sore afterwards.

The downside? You aren't supposed to use a gas-powered chainsaw after having it in! And you have to hold a hairdryer more than 6 inches away from it and should listen to your cellphone in your right ear. Apart from those restrictions, and a few others, it's really no big deal.

Don't worry?

Suzanne
 
I'm sorry to read that Ghon is still having trouble managing his heartrate. I have no advice, but I am positive that it will resolve at some point and your lives will get back to normal. Best wishes and please keep us updated.
 
Always some stumbling blocks isn't there,better now than later

and no i don't have a pm (YET) who knows if i ever well.

But you know they will fix up this problem too and soon it's

all gonna be done,I can imagine he's not pleased,but hey hang

in there ,you are doing such a great job with the children and him.

This is hard on you to but be positive,and it will be corrected and

when my turn comes and i need your experiences you are all there

for me too. Your doing great and so is he gonna be fine....Continued

prayers for all of you.(((HUGS)))

zipper2 (DEB)
 
Sorry to hear things haven't gone as smoothly as they could have. I don't have any experience or words of advice about the pacemaker, but I hope he doesn't have any problems with it and can continue with his recovery.


A x
 
sometimes things take a little longer than we hoped for. prayers and best wishes for resolution quickly. Thanks for keeping us in the loop. Blessins............
 
Thank you all

Thank you all

Thank you all for all of the positive energy sent my way. This is my first time on since the surgery. I made it folks and I FEEL GREAT. I just have to wait for my INR numbersto get up so I can leave. Everyone want's me out by Monday. I can't wait. I ve been walking laps around the nurses staton. Im up to just under a mile a day. Again thanks for the support and I 'll be back later.
 
HIP HIP HOORAY...............AWESOME SO GREAT TO SEE YOUR POST!!!!!!!!!!


Zipper2 (DEB)
 
So glad you will soon be on your way home. Best wishes for a speedy recovery once you get there.
 
Good for YOU!
Just make sure you keep on walking past that nursing station.....no time to flirt if you want to get out of there LOL

Best wishes for a bump free recovery.
 
Today is the day. Going home my INR didn't get where they wanted it to be. So home I go with lovenox injections. I cant wait to get home where I can sit back and share my experience with you guys. Believe it or not my sternum doesnt heart nearly as much as it did last time. My energy level is sooooooooo much higher I feel like a kid. I cant wait for spring and going backpacking with my nephew and son. I'll talk to you guys later
Ghon
 
So last night I'm asleep, sleeping well for a change to boot. I woke up at 4:30 to go to the bathroom and looked in the mirror. It looked as if I got shot in the chest. My incision sight for the pacemaker has started leaking. Called Hopkins and they told me to go to my cardio and have my INR checked. So went in my INR was only 2.2. The cardio looked at the site and said it wasn't that bad. But, the fear of infection made him call my surgeon. So now I have to go back to Hopkins in the morning and have them look at it. I'm tired of these nagging little bumps in the road.
 
I think a lot of us can appreciate how you are feeling right now. It is frustrating to have those bumps. Believe it or not though, one day you'll wake up and just feel good. No more soreness, no more threats of infections or stitches working their way out.

Hang in there...your time will come.

Kim
 
Turns out a stitch from the inside worked it's way out. All good now. New event is that if I twist or bend a certain way I experience a stabbing pain like a runners cramp just below my incision. Gonna see if it goes away with a little rest.
 
interesting evidence on the stitch and odd pain with bending etc.

is there some sort of a nerve there where stitch popped?

sorry for your bump in the road and going back and fourth to get

things looked after,we all get tired of hospital returns and when i think

about no driving for a period of time after surgery,omigosh:rolleyes:

i'll be late for everything i will need tended to after surgery,back to

depending on rides:eek:

Keep us posted on this.

zipper2 (DEB)
 
Sorry you have had these bumps in the road and hope all is smooth sailing now!
 

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