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deogloria

I've been meaning to drop in and update everyone so no one thinks I'm dead. :p

Things have been so crazy-busy. Between bi-weekly perinatal visits, monthly cardio visits, taking care of the kids, and being paralyzed with anxiety over financial and other issues, I just couldn't make myself think too much about anything serious. I feel kind of bad, because I'd like to be more of a part of this community, beyond popping in to ask questions or give updates.

Hopefully this will be changing. We've made some decisions that are positively affecting our lives as a family, and that have reduced my stress levels tremendously. The biggest being that we got rid of the tv, cable, and our netflix account. The kids are becoming better behaved, and my husband and I have more time for each other and the household duties. I've also made a commitment to cook at home, and not junky stuff, but from-scratch, whole foods. I'm also trying to eat more raw food, at least to do one big green smoothie a day. So all that is helping.

As far as heart stuff goes, my doc put me on labetalol, 100mg twice a day. Though my blood pressure is actually good, he wants to reduce it a little to hopefully help insure that there is less stress on the aneurysm. My symptoms are getting worse, especially the shortness of breath. Almost any exertion now is wearing me out, although today my doc said that could be from the beta blocker. He told me to cut the pills in half from now on.

I'm definitely showing now, I'm around 20 weeks or so. Everything looks normal with the baby so far. Four more weeks and the baby is viable, which will ease my mind. Then, should things with the aneurysm go awry, there is at least a decent possibility of the baby surviving. I think I'll be fine for a while, though. Something tells me I'll make it to at least six months along, probably farther, like 8 months.

The echo today showed 5 cm, as opposed to the 4.8/4.9 previously. Doc isn't worried though (no more than before, anyway), because it's shown up as 5 cm on the TEE, so there is always some variation. He still wants to do the heart surgery right after the baby is born, although the surgeon he consulted wanted to wait three months. I'm going to Mayo in November for a second opinion, so we're waiting til after that to really decide. I do NOT want to wait til the baby is almost here to decide...who knows if I could go into labor early?

As far as the valve goes, all looks the same--mild to moderate regurge, although there is more flow across the valve (meaning more blood volume due to pregnancy). He's not worried about the valve right now.

Anyway, that's my long-winded update. Still here. Still pregnant. No exploding aorta (so far). All good things. :cool:
 
Glad to hear things are changing, some for the better.

I have to say that I think waiting with that aneurysm is a big mistake. I think they need to get to it asap and not a minute later. Mine ruptured where yours is measuring now, so I'm not one to test the tensile strength of the vessels anymore.

Stop and update us now and then. Good luck on the cooking. I've been doing the same. :)
 
Wow, you are an inspiration to me. Good job on removing some stress from your life.
I have an aortic aneurysm also. It measured 4.7 cm last May. I am pretty sure waiting is not the best path forward for you.
 
Good to hear from you and happy to hear your family is making positive changes.
Really appreicate you updating us.... I've thought of you and hoped you would stop by.

You seem in control and on top of things and hope all goes as smoothly as possible for you. I have to agree it's a good idea to make those hard decisions soon so you have your 'game plan' in place.

Good luck and please stop in when you have the time.
 
I agree, normally I would never wait. But being pregnant, I couldn't risk hurting the baby. The surgeon basically said the surgery would almost definitely kill the baby. If the odds were better for her, I would consider it. But they're not. My cardio agrees with me on waiting, and so does the surgeon. Although my cardio wants the surgery done ASAP after my cesarean.

I gave this decision a lot of thought, and after weighing all the options and a lot of prayer, I definitely believe I've made the right decision. As soon as I made the decision, I was at peace with it, whereas before, I was a wreck. I believe that when it is my time to go, I will go...whether I am carrying this baby and my aorta bursts, or I get the surgery and then get killed in a car accident. I really believe that my aorta will be fine if it's not my time to go yet. (Of course, this is assuming one doesn't take extraordinary risks...like completely ignoring the advice of the doctors God gives you, and never get the surgery! :eek:)

I feel a strong sense that I'm going to be okay, at least for the pregnancy. After that, I don't really know. But I'm trusting God on this. I know that may be hard for anyone out there to understand if they don't believe in God or don't trust Him with everything, but I do. If I died tomorrow, I wouldn't regret my decision, because I know that He is in control of my life and my death. I always say that when that pre-destined time comes, I'd rather die while growing a life within me (even if the baby didn't make it) than from just going about my daily life. It just seems like a much more meaningful death, to me.

I do appreciate everyone's concern and advice, though. :) I've gotten so much good advice and support from everyone here!

But don't worry, my doc is definitely on top of things, doing regular echos and putting me on beta blockers. And since, looking back through records of old echos, the size of the aneurysm has been stable for the last two or three years (too bad my old docs were too incompetent to TELL me I had an aneurysm back then! :rolleyes: sheesh) so although that doesn't mean I can't dissect, it is reassuring. Also, I'm only four weeks away from the baby being viable, so if at that point things look worse, we can always deliver the baby early and do the surgery then. If there's a decent chance for the baby's survival, I would be okay with that.

Anyway, I will keep checking in, so no one worries that I keeled over. ;)
 
Thanks so much for giving us such a thorough update. Keep us posted. You have my prayers.
 
Keeping you in my prayers! I hope that you remain stable or at least reasonably stable until your baby is born & then doctors can perform the surgery you need. In the meantime, we'll keep praying!
 
it was nice seeing your update. i am glad things are going well, and i wish you the best! i will keep an open eye for more updates. :)
 

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