Last April I went to Boston for a second opinion and had a cardiac work-up. Dr. Valente from Boston spoke with my local "ACHD" after the evaluation. When I went to my local doc last November he completely dismissed everything the doc found out in Boston. "He didn't learn anything new." He completely dismissed me when I told him that I could not do what I did last year. He is also still talking about waiting do to my next PVR until he can do it in the cath lab. He did not know how long it would be.
My tissue pulmonary valve is 17 years old with moderate regurgitation. (30% regurgitation according to the MRI last April in Boston.) My right ventricle is 1.8X the size of my left ventricle according to the same MRI.
I called up Dr. Valente and told her that I wanted her to be captain of my medical team. She wants to do cardiac MRI, stress test, V/Q scan and heart cath next April. Everything is all set up for the end of April. I am also seeing the surgeon to talk about what the options will be when it is time for surgery. I have a feeling that surgery will be this year or next. All I need to do is get plane tickets and hotel reservations.
One thing that surprised me is that they plan on having me spend the night in the hospital after the heart cath. I did not think that they did that any more.
I have also been trying to go part time, but my boss says that there is no way that he can do that now. He was able to help 2 other people without a problem. It looks like I may be looking for another job.
Debbie
My tissue pulmonary valve is 17 years old with moderate regurgitation. (30% regurgitation according to the MRI last April in Boston.) My right ventricle is 1.8X the size of my left ventricle according to the same MRI.
I called up Dr. Valente and told her that I wanted her to be captain of my medical team. She wants to do cardiac MRI, stress test, V/Q scan and heart cath next April. Everything is all set up for the end of April. I am also seeing the surgeon to talk about what the options will be when it is time for surgery. I have a feeling that surgery will be this year or next. All I need to do is get plane tickets and hotel reservations.
One thing that surprised me is that they plan on having me spend the night in the hospital after the heart cath. I did not think that they did that any more.
I have also been trying to go part time, but my boss says that there is no way that he can do that now. He was able to help 2 other people without a problem. It looks like I may be looking for another job.
Debbie