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jgibson

Well-known member
Joined
Feb 7, 2007
Messages
74
Location
Murfreesboro, TN USA
Hello everyone.

Just wanted to take a moment to introduce myself and give you my history.

My name is Jeff Gibson. I live in the Murfreesboro, TN area (just southeast of Nashville, TN). I have known that I have had a mitral valve leak since I was about 8 years old (39 now). Never had any complications, never had symptoms. In fact, I can run 3 miles a day and have never run into any issues. However, I have always been curious of what the condition of my Mitral Valve actually was.

One evening after a band rehearsal at my church (First Baptist Church Smyrna), I got to talking with our drummer about my mitral valve. That's when he informed me he was an MRI tech at a heart clinic in Nashville. He offered to take me in on a Saturday and do a scan of my heart to see how everything looked (Love the free scans). Anyway, we found a Saturday and went in for the scan. Afterwards he told me that he thought the leak was in the moderate category and felt that I should meet with a cardiologist. He suggested Dr. Sean Hughes that worked with him.

I initially met with Dr. Hughes in late 2005. I've been sent in for echo's (the Doppler ones), standard EKG's, and in late 2006 he sent me in for another big MRI. This time they used the contrast so they could get a better look. Long story short, what they determined is that I actually have a severe leak. 44% of my blood volume gets regurgitated back through the valve. Also, my heart is right on the edge of starting to enlarge (I think I am just under 60% in size). So Dr. Hughes suggested that since there was data that showed taking care of a condition like this now (instead of waiting until my heart starts to show signs of actually enlargement), he felt I should get the valve fixed. He also felt that since I was healthy and in good shape, It would be a good idea to do this now.

Dr. Hughes gave me two surgeons names. Dr. Todd Shuman, and Dr. Michael Petracek. I met with Dr. Shuman in January of this year (2007) at St. Thomas. He explained to surgery to me, talked to me about my recovery time, answered basic questions for me. Nice Doctor, but he couldn't tell me if he could repair my valve, or if they would need to replace it. They needed to do a TEE to determine what they felt they could do. So in February, I went in for the TEE (My Cardiologist did this). The best words I heard for him after the procedure, was that it looked like the valve could be repaired. At that point, I decided to go ahead and meet with Dr. Michael Petracek because I had started to hear a LOT of good things about him. Anyway, I met with Dr. Petracek and was immediately sold on him. This was in March/April. Anyway, since I work as a software consultant, and am self employed, I asked if I could hold off until the fall. Dr. Patrecek said that would be fine, but he wouldn't wait more then a year.

So here is where I stand. I am scheduled for Mitral Valve repair at Vanderbilt on October 15th at 7:00AM. Their going to do the port access method, which Dr. Patrecek is well known for. Even does his replacements that way. I am going in for some additional appointments and a heart cath to get the road map before then, but my OHS is fast approaching.

I won't lie to everyone. I'm a bit nervous. Even though Dr. Petracek's track record is spectacular, you just never know.

I would appreciate any feedback from anybody else that has gone/going through this.

Sorry for the long post, just wanted to get everything in. I've really enjoyed the website.

Thanks
 
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Hi Jeff -

Welcome to the site; glad you found it. Hope all goes well in your upcoming surgery.

A couple of quick suggestions: 1) get and/or keep copies of all of your tests and/or results for your personal records; 2) have a plan B--choose a valve in case they can't do the repair.

Take care and post again, as you will naturally have more questions. And other members will no doubt soon reply also.
 
Dear Jeff,
Welcome to the forum & I just want to wish you the best with your upcoming OHS. I have no doubts that you will come out of it just fine! And I can relate to your fears having been there several times myself! It's normal to have these fears but just trust in God & let your doctors do the rest!

Keep us posted on your progress!

Best wishes,
njp:)
 
Welcome, Jeff. It sounds like you have done all your homework and are well prepared. Other than discussing with the surgeon what kind of valve he will use if he can't repair and getting all your personal matters in order, I don't have any other suggestions. I will put you on the calendar for October 15th and we look forward to hearing that all went well for you.
 
Hello Jeff,

I had a mitral valve repair almost two years ago, and I am so happy with the results! Originally, I was hoping for port access, but when the surgeon saw the TEE, he said he saw things that made him change his mind. When he actually opened me up, it was even worse than he thought, and he had to do the repair in a different, more complicated way than usual. He told me later that if he had gone through the side, he would have had to replace the valve (replacement is much easier than repair).

In any case, since your TEE indicates to him that you will be able to have port access, I am sure everything will go great!

Even with my sternotomy, I found OHS was not as bad as imagined. Five weeks after my surgery, we drove down (my husband drove) to see cousins in NY for Thanksgiving. No one could believe I had just had OHS 5 weeks before.

Anyhow, have it done soon while you are still a good candidate for port access.
 
Welcome to the VR Community, Jeff. Glad you found us.

I had a mitral valve repair a year and a half ago, about 18 months from when my GP first detected a strong heart murmur and referred me to a Card. I never had a hint of any heart issues all my life until then. I didn't have any symptoms, either. However, I'm so glad it was caught in time as in that short time the regurg went from moderate to severe. When I finally got in for the surgery, and the heart had just started to enlarge. However, at my 6 month post-op echo, the heart had already returned to within range.

While no walk in the park, the OHS experience was actually not as bad as my fears imagined. The anxiety up to the surgery, and the patience during what seems like a slow recovery, were the worst parts. The surgery itself was actually not so bad. My first thought when I was waking up was "Is it over already". I swear that from the time I started counting backwards when they were putting me under, and then waking up, it felt like it was a split second.

Best wishes.
 
Welcome! I can't add anything to what everyone else has said, other than make sure this surgeon you've chosen has a lot of MV repairs under his belt. Repair are preferred - when done well. Sounds like you may already know this information about him - if you don't - just ask. I'm sure he'll be happy to tell you.

Best wishes!
 
Hello and welcome... I have had MV repair w/heart port, and three weeks ago had a replacement the traditional way (through the sternum). I am almost 39 and other than that have always been very active and healthy. THis is a great site with lots of support and really nice people who know what you're going through/will go through. Sounds like you are taking all the right steps towards your repair. Best wishes to you :)
 
Welcome

Welcome

Best wishes and prayers for your upcoming surgery.
 
Hello Jeff,
It is nice to meet you but as everyone here says sorry to meet under the circumstances. Your post was very interesting to read. Did you not have regular echos to keep a check on your valve prior to the scan your friend did? That's interesting.

I'm sorry that I can't offer any good advice because I'm nowhere near the stage you're at preparing for surgery. Sometimes I wish I was. I've known about my leaky mitral valve only since August 2004 and I am tired of being in the "waiting room" and not knowing when and if etc. Anyway, I do want to wish you all the best as you prepare for your big day.
Peace! and Godspeed!
Susie
 
Hi Jeff,
just wanted to wish you best of luck with your surgery, hope everything goes well. Paula
 
Welcome to our World Jeff!

One (of over 25) Cardiologists at The Heart Center in Huntsville, AL refers patients to Dr. Petracek. I believe this Cardio did his residency at Vanderbilt.

One Question came to mind from your post:

Is "Port Access" the same as a "Right Thorocotomy"?

One of our 'favorite expressions' is "Sooner is Better" when it comes to Fixing Valve Problems. Surgeons also support that philosophy because they like to operate BEFORE there is any Permanent Damage to the Heart Muscles and Walls. This is a good idea!

I hope you will find some comfort in the fact that for first time surgeries in patients under age 60 that OHS is Highly Successful with only a 1% risk of morbidity and a 1% chance of stroke. You don't even want to think about the alternative of doing Nothing!

BTW, I have friends in Murfreesboro.

'AL Capshaw' in North Alabama
 
Welcome to the site Jeff! Glad you found us. I can't really add anything to what's already been said. It sounds like you're doing your homework. I've had a repair and a replacement. Both were many years ago. I just celebrated 26 years with my St. Jude mechanical. I'm sure you'll sail through this surgery just fine. Keep us posted!:) Oh, by the way, I used to live in Nashville. That was many moons ago, but I really loved it there. LINDA
 
Hi Jeff,

I just want to say welcome to vr.com. You will find information here on any heart related issue/question you may have.......................come to think of it, you can/will also get it on everything else under the sun:D :rolleyes: :D

This truly a wonderful site with many wonderful people.
 
I haven't read the other replies so I might repeat some of what they have said. Apologies, if necessary.

You have come to the best place for reassurance about your surgery. You are young, in good health, and sound upbeat except you are 'a bit nervous'. That's probably an understatement, because most who come in are downright scared. We understand that - we've been there, too. Your physical condition will help you along the way and you should have a good recovery. Just yesterday we had an 87 yr old lady who had a replacement.

Ask any questions of the membership and you will get plenty of feedback.

Welcome to VR.

Blessins........
 
Welcome to the site Jeff! It is very natural to be nervous about surgery. We are all here for you!:)

Karl
 
hey!

hey!

I totally understand!:p I am about 2 weeks away from surgery and a "bit nervous". :rolleyes: There is alot of encouragement to draw from here which is great. My prayers are with you. God bless. Seth
 
Hi Jeff, you will be just fine.
I was totally scared before my OHS, I could not even talk about it.
It seems really silly now.....
You are really lucky to have found this group and so are way ahead of the game!
Best wishes.:)
 
Thanks everyone!

Thanks everyone!

I really appreciate everybody's responses to my post. I'm sure I'll be posting more as things get closer. :)

Can anybody tell me how I can get my signature to show up under my posts? :confused:

Thanks again.
 
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Hi Jeff, go to user CP at the top of the thread and then click on edit signature.




jgibson said:
I really appreciate everybody's responses to my post. I'm sure I'll be posting more as things get closer. :)

Can anybody tell me how I can get my signature to show up under my posts? :confused:


Thanks again.

Jeff Gibson
Murfreesboro, TN
 
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