New member to VR born with TGA

shop deals on amazon
Advertise with us
Shop deals on ebay
Valve Replacement Forums

Help Support Valve Replacement Forums:

This site may earn a commission from merchant affiliate links, including eBay, Amazon, and others.
A

AndCox

Hello,
I am a new member as of today! I wanted to say hello to all the existing members. I think this is wonderful that all of us have a place to talk and i can not beleive it took me this long to find you. I was born in 1981 with TGA i'm very sure a few of you know Constantine Mavroudis well i was his first live Senning in Louisville Kentucky. When I was 12 my tricusbid valve was leaking bad I lived in Maryland at the time and went to Johns Hopkins in Baltimore. They wanted to replace the valve, but my mom wanted a second opinion. So she called Mavroudis/Backer. He said bring him out here we have a new procedure that fixes the heart to normal. I went out at 13 and had the aterial banding. The following year I received the aterial switch! Wow what a difference... Well the tricusbid valve stoped leaking when they preformed the switch but the aortic valve started leaking. They replaced that valve with a cadaver valve. At 26 I got about 11 years out of the valve. I'm at home recovering from my 4 Open heart survery May 22nd from Mavroudis/Backer he has done all my heart surgerys and I live in North Carolina.. They replaced the valve with a St.Jude's mechanical aortic valve and installed a pacemaker!

I would love to talk to anyone with Congenital defects
God bless you all you all have a special place in my heart!

Andy
Raleigh North Carolina
 
Welcome to the VR community, Andy. Glad you found us. I am sure your experiences with OHS will be an inspiration to those in the "waiting room". Best wishes for a continued smooth recovery.

BTW, a few years ago I spent several months in Raleigh and Rocky Mount NC for business. Both very lovely places, and I really enjoyed my time there.
 
Welcome, Andy and best wishes for a speedy recovery. I'm sure you will have a lot to offer this forum and look forward to your participation.
 
Andy, thank you for the wonderful post. I am a radiologist who does a lot of prenatal obstetric ultrasound looking for congenital abnormalities. With present technology we can detect TGA in utero. As soon as the babies are born they are referred to the appropriate medical center. Definitive arterial switches are done early. Pulmonary valve stenosis is the most common valve problem and usually treated at the same surgery. I know you will do well. Marty
 
Nice to meet you, Andy.

We've got more than a few members here who can relate to your story; I hope they will see your thread and chime in.

Once again, welcome!
 
Hi Andy, I'm glad you joined. Have you found the anti-coagulation forum? They will really be able to help w/ your questions, Lyn
 
Andy,

Glad to see you over here, too :). WELCOME!

I had Mavroudis and Backer for my January 2003 surgery at Chicago's CMH.



Cort:33swm."Mr Monte Carlo.Mr Road Trip".pig valve.pacemaker
WRMNshowcase.lego.HO.model.MCs.RT.CHD = http://www.chevyasylum.com/cort
"The stars might lie, but the numbers never do" ... Mary Chapin-Carpenter ... 'I Feel Lucky'
 
Welcome to this wonderful group! I also have TGA, but mine it "congenitally corrected" in that the top chambers are switched too. When my tricuspid valve started leaking pretty badly in 2002 (I was 24) the surgeon (Dr. Charles Frasier) thought about conditioning my heart to do a double switch, but it was determined that my RV was too far gone and instead replaced the valce with a St. Jude's mechanical. I'm coming up on 5 years with it. By no means am I "fixed" (and any doc who says a CHDer is truly fixed is unaware of the problems we face as adults), but I'm going strong. I'm glad you're doing well!

Take care,
 
You must log in or register to reply here.

Latest posts

Back
Top