Third aortic valve replacement this year

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Akz

New member
Joined
Nov 10, 2022
Messages
2
Location
Bulgaria
Hello everyone!

First of all, I would like to say that this is my first post and I am speaking on behalf of my father. I am sure that he would love to talk to all of you personally, but he does not speak English very well. He is 59 years old and is currently in the hospital awaiting his third aortic valve replacement for this year. I wanted to share his story with you.

Initially, my father was in good health condition and didn't have an apparent reason to have an aortic valve replacement. However, one day he went to the hospital to get checked because of a nosebleed and this is where it all began. The doctors found something in his heart that they diagnosed as Papillary Fibroelastoma - a benign tumor that might cause complications if it is not removed. At that point, it was not clear if the aortic valve would need to be replaced, but in either case, my father would still have chosen to go through the surgery rather than worry for the rest of his life. He stayed in the hospital for more than a week before the actual surgery was done which was very stressful for him, but after all of that, the surgery went well. He got a mechanical aortic valve. When he got home, he had lost a lot of weight and was getting tired easily, but gradually he was getting better. At the 3-month mark after the surgery, he was doing daily walks of 1-2km and he looked great. However, one morning he woke up and started having double vision and was easily getting tired again so he went to the hospital to get checked. The doctors told him that he had to undergo a second surgery because he has weak heart tissue that is not able to hold the aortic valve in place. He was devastated because he had to go through all of this again, but this time he didn't have any choice. He had his valve replaced with a new mechanical one, and the surgeon reinforced it because of the weak heart tissue. When he got home, he looked way better than after the first surgery. Also, the recovery was generally going better, at least until last week when he got sick with a fever. This is happening at around the 2-month mark after the surgery. It turned out that he has pneumonia, and not only that, he is also in need of yet another surgery because the heart tissue is still not holding the valve well enough even with the reinforcements. This time the surgery is a lot more complicated because the doctor will have to add additional tissue(not sure what is the correct term), that will support the valve.

He is currently in the hospital getting his pneumonia treated, but the aortic valve is also causing complications. So he is currently in a situation where his pneumonia needs to be treated as soon as possible, and his aortic valve needs to be replaced as soon as possible, but not before the pneumonia is treated. I am also worried that things are getting worse because he started experiencing delirium. Anyway, that is all for now. I know that it is a long post, so thanks to anybody that have read it.
 

nobog

Well-known member
Joined
Jun 14, 2019
Messages
187
Location
Wisconsin, USA
Sorry to hear of you fathers' issues. Maybe a thought - use a mitral mechanical heart valve and put it in "backwards" (for the correct flow), this is because mitral prosthetic heart valves generally have a much larger cuff - this would help with the sealing and give the Drs something more to work with.

PS, just to be clear, aortic and mitral valves themselves are the same, they are just mounted on the valve holder from different sides, of course the cuff configuration is different as mentioned.
 

pellicle

Professional Dingbat, Guru and Merkintologist
Joined
Nov 4, 2012
Messages
10,756
Location
Queensland, OzTrayLeeYa
Hi and welcome

Anyway, that is all for now.

I can't offer much to advise your situation, but the comment by nobog is well worth examining (my confidence in his view is very high)

I hope your father gets through this challenge soon, (he's about the same age as me) and I've had 3 OHS's.

On a practical note: I'm not sure what anticoagulant he's on but if its warfarin and you're having any issues managing his INR then feel free to reach out by PM.

Best wishes
 

pellicle

Professional Dingbat, Guru and Merkintologist
Joined
Nov 4, 2012
Messages
10,756
Location
Queensland, OzTrayLeeYa
He is on acenocoumarol.
I suspected it would be that.
Don't miss any doses

half life.jpg
 
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dornole

Well-known member
Joined
Jan 5, 2014
Messages
876
Location
Minnesota, US
I’m sorry to hear about your fathers difficulties with the valve dysfunction and pneumonia. I know that when my mitral valve was bad it really impacted my lungs. I got pulmonary edema and pulmonary hypertension - lots of fluid build up and a dry hacking cough. Positioning is important, he should be upright as much as possible including to sleep, I expect they’re on top of that but just in case. I was also put on lasix to get some of the water off my lungs. I hope your dad can fight off this double threat and they can find a solution that works for him. He’s lucky to have you as an advocate.
 
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carolinemc

Well-known member
Joined
May 31, 2010
Messages
1,315
Location
kansas city, mo
Hello everyone!

First of all, I would like to say that this is my first post and I am speaking on behalf of my father. I am sure that he would love to talk to all of you personally, but he does not speak English very well. He is 59 years old and is currently in the hospital awaiting his third aortic valve replacement for this year. I wanted to share his story with you.

Initially, my father was in good health condition and didn't have an apparent reason to have an aortic valve replacement. However, one day he went to the hospital to get checked because of a nosebleed and this is where it all began. The doctors found something in his heart that they diagnosed as Papillary Fibroelastoma - a benign tumor that might cause complications if it is not removed. At that point, it was not clear if the aortic valve would need to be replaced, but in either case, my father would still have chosen to go through the surgery rather than worry for the rest of his life. He stayed in the hospital for more than a week before the actual surgery was done which was very stressful for him, but after all of that, the surgery went well. He got a mechanical aortic valve. When he got home, he had lost a lot of weight and was getting tired easily, but gradually he was getting better. At the 3-month mark after the surgery, he was doing daily walks of 1-2km, and he looked great. However, one morning he woke up and started having double vision and was easily getting tired again, so he went to the hospital to get checked. The doctors told him that he had to undergo a second surgery because he has weak heart tissue that is not able to hold the aortic valve in place. He was devastated because he had to go through all of this again, but this time he didn't have any choice. He had his valve replaced with a new mechanical one, and the surgeon reinforced it because of the weak heart tissue. When he got home, he looked way better than after the first surgery. Also, the recovery was generally going better, at least until last week when he got sick with a fever. This is happening at around the 2-month mark after the surgery. It turned out that he has pneumonia, and not only that, but he is also in need of yet another surgery because the heart tissue is still not holding the valve well enough even with the reinforcements. This time the surgery is a lot more complicated because the doctor will have to add additional tissue (not sure what is the correct term), that will support the valve.

He is currently in the hospital getting his pneumonia treated, but the aortic valve is also causing complications. So, he is currently in a situation where his pneumonia needs to be treated as soon as possible, and his aortic valve needs to be replaced as soon as possible, but not before the pneumonia is treated. I am also worried that things are getting worse because he started experiencing delirium. Anyway, that is all for now. I know that it is a long post, so thanks to anybody that have read it.
So sorry about your father. There are things beyond our control, and we have to leave it into the father above to carry us through. He is a fighter, keep that in mind. until he is over the pneumonia, they will not di surgery till he is infection free. Praying for your father and your family to get through this difficult time. Peace.
 

oo0My_Valve0oo

Well-known member
Joined
Aug 18, 2021
Messages
60
Location
United States
Akz, He is in the hospital dealing with the pneumonia then he will be having a 3rd heart surgery all within one year, wow. This is not a candidate for self-managing anticoagulant medication. Pneumonia before and causing a delay is better than after. They do a lot to prevent it immediately following OHS as you are so vulnerable. Good luck to your father. Looking forward to a successful resolution to your father's health condition.
 
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